NF Camp

Banner NF Camp 2016

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2016 NF Summer Camp

NF Camp is an annual summer camp dedicated to young adults who have been affected by neurofibromatosis (NF). This year marks the 20th anniversary of this week-long experience for young adults ages 12 to 22. NF Camp takes place on the third or fourth week of July (6 nights/6 days) in Salt Lake City, Utah. Each week will include exciting, fun-filled activities so campers are welcome to attend whichever session best fits their family’s schedule.

If you would like to sponsor a camper, click here.

Young adults ages 12-22 that are affected by NF1, NF2, or schwannomatosis. Those older than 22 may register in special circumstances. If capacity is limited, priority is determined by age.

Our facility can host up to 40 campers per week with a counselor to camper ratio of 5:1.

2016 NF Camp sessions are July 16-22 and July 23-29.
Applications are due June 16, 2016.


Off Site Activities Include:
Water Park, Amusement Park, Go Karts, Laser Tag, Bumper Boats, and more!

On Site Activities Include:
Horseback Riding, Rock Climbing, High and Low Ropes Course, Fishing, Field Games, Talent Show and a great team building day that includes COLOR aWAReness!

What is COLOR aWAReness?

Campers are split into three teams for Survivor Day—Green, Blue, and White. These three teams compete to earn points on the last day of camp. They then go home from camp with a goal of gaining points throughout the year. Points can be earned by community events, building NF awareness, and even school projects. At the end of the year the team with the most points will earn a prize, and most importantly, win bragging rights for the next camp season!

Community, support, friendship, and fun! Opportunities are endless for teens and young adults beginning the instant they arrive at NF Camp. Often for the first time, campers can talk freely about living with NF, share their experiences, and make long-lasting friendships. NF Camp is a chance for young people to get away from the stresses of life. At camp they don’t have to worry about the next MRI or doctor appointment; they can be kids - have fun and enjoy life!

Camp Kostopulos Dream Foundation (Camp K)
4180 Emigration Canyon Rd,
Salt Lake City, UT 84108

Camp K
NF Camp takes place at Camp Kostopulos (Camp K) in Emigration Canyon, Utah on 25 beautiful acres in the canyons outside Salt Lake City. This campground has a full-time nurse on site and caters to individuals with special needs, providing a wide array of recreational activities to accommodate all ages and abilities.


You can download the application HERE or you can email the NF Camp Manager, Julie at

All applications must be submitted with a physical signed from the camper’s primary physician. A full physical is mandatory for all those attending camp. Your physical must list the camper’s medical regimens and need-to-know details. Camp K has an RN on staff who meets with each camper to discuss any medication regimen.

Tuition and Scholarship

Tuition is $650 per camper, which includes room and board, food, and activities. Travel arrangements are not included.Scholarships are available upon request.

We would never want an NF Hero to be unable to join us at NF Camp due to financial burdens. For a scholarship application please email

If you live nearby or are taking a road trip to camp, we can arrange for drop-off and pick-up times. Campers flying in must arrive and depart before 2pm on travel days. If this is difficult we will try to work with your circumstances.

On Travel Day, Camp K Directors will meet all campers at the airport just outside the gate as they get off the plane. Directors will be in CTF blue T-shirts, allowing them to be safely identified. From there, campers will grab their luggage and hang out in the food court together as they wait for the other arriving campers. All campers wait for one another submerging them into the NF Camp community from day one! Once the last camper arrives, all campers will take camp vans back to camp to get settled in.


If you would like to sponsor a camper, click here.

Where does my child sleep?
Each program accommodates 40 campers and is filled on a first-come, first-served basis. There are two cabins for sleeping arrangements: one for boys and one for girls.

What about the phone?
Emergency phones are located on Camp K grounds. Children may bring cell phones but they may only be used at a specific time each day to phone home. We want campers to immerse themselves into camp life, and disconnect from outside distractions.

How do I sign up for NF Camp?
By visiting and downloading the application or by emailing a request for anapplication to

Who will take care of my child’s medical needs?
Camp K has an RN on staff who meets with each camper to discusses any medication regimen.

What is the camper to counselor ratio?
Our ratio is at most 5:1, each group of campers creates a relationship with our counselors and sticks with them all week!

What if my camper wants to come home midweek?
This is very rare, but if need be, it is upon the parent or guardian to arrange new travel plans for the camper. Camp K and CTF will make sure we can get them to the airport, as needed.

How can I encourage my reluctant child to attend camp?
Show them our brochure, our website, and videos. Additionally, NF Camp has many return campers who are willing to talk to NF heroes about this amazing opportunity.

What if I am too nervous to send my kid to camp?
No worries!! We have many families who are willing to talk to you one-on-one about the camp experience. They remember what was like to be in your shoes!

What do we pack for NF Camp?
Please do not pack your camper’s Sunday best. We encourage all campers wear comfy and sporty clothes! But don’t worry, once we receive and accept your application we will send you an entire packing list.

What is your camp discipline policy?
We have all campers sign a Code of Conduct before camp so they are aware of our camp standards prior to arriving. At NF Camp we have a three-strike rule. First instance, campers talk with a counselor as a warning for their actions. Second, Camp K and CTF speak with the parent regarding behavior and camper is required to sign a final notice behavioral contract. Third, arrangements are made to send the camper home at guardian's expense. We understand that the behavior of one camper can have a significant impact on the group, so we are committed to ensuring that our campers show respect for one another and for our staff. FORTUNATELY we get a great group of campers, and only rarely need to utilize the most severe consequences.

What happens in a medical emergency at camp?
There is an RN on site at all times. Additionally, Camp K has a wonderful relationship with Utah’s Children Hospital and it is only minutes away. Parents are always contacted and campers are in good hands. CTF has all insurance information on file for campers from the camper’s application.

Can I switch sessions after my child is enrolled?
Session changes can be made as long as space is available. However sessions fill up quickly, and changes are not always possible. There are no fees for making session changes, unless full scholarship has been received and flights have already been booked.

Do you have a menu for picky eaters, or allergies?
Eating requirements must be specified on the application in order for Camp K to have proper food available for your camper.

Should I give my camper spending money?
Spending money is not mandatory, but encouraged for when campers want a little extra something on our off-sites. We suggest no more than $50.

What if my camper does not want to do a certain activity?
That is no problem; no camper is required to do any one activity. But they will always be encouraged to do their best, and take a step out of their comfort zone.



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