Introducing the New

Oct 17, 2016, Posted in Latest News

Our website has had a makeover! We're proud to announce the new, your destination for NF information, news, events, and what we're doing to END NF.

First Woman to Attempt 100 Full Distance Triathlons Races IRONMAN Florida

Oct 27, 2016

50-year-old Florida triathlete will complete 140.6 mile race in honor of young child living with genetic disorder

The Children’s Tumor Foundation and Vice President Biden’s National Cancer Moonshot Initiative

Oct 26, 2016, Posted in Collaborations, Latest News, Press Release, Science

Foundation President Annette Bakker Participates in Key Meetings Dedicated to Accelerating the Cure for Cancer

Synodos for NF1 Team Gives Update

Oct 25, 2016, Posted in Collaborations, Latest News, NF1, Science, Synodos, Video

Last year, the Children's Tumor Foundation announced Synodos for NF1, a unique consortium bringing together a multidisciplinary team of scientists, clinicians, technicians, patients and other experts from world-class labs at academic and medical centers. These scientists have pledged to work together and share unpublished information, datasets, and results, thereby accelerating the drug development process.

Survey on Social Media and NF

Oct 24, 2016, Posted in Outside Opportunities, Science

You are invited to participate in a study of the effects of social media and support groups on feelings of isolation and self-esteem that may arise in individuals with neurofibromatosis (NF). Participation involves completing an online questionnaire. The questionnaire also assesses the feelings that individuals in the NF community have towards the representation of the NF in social media.

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