We’re proud to announce that our latest annual report – titled From Process to Progress – is now available to read online. Outlining the Foundation’s activities over the past year, from research to awareness to patient support, the annual report highlights a vibrant NF community that is making great progress in the fight to end NF. Additionally, the financial pages offer transparency on how funds are spent, earning the Foundation a four-star rating from Charity Navigator once again. And of course, none of this is possible without the support of all of you – the thousands of donors who give to ensure that NF research and programs continue.
On August 10, 2017, the 65th Annual NIBROC Parade in Corbin, Kentucky featured the debut of a very special car driven by Wallen’s Towing & Recovery, a local Corbin automotive company. The parade is part of a three day festival that includes activities for all age groups and interests.
By LaShannon Spencer
I am very loud. Some people might even say that I am obnoxious. Although, I’m less crude now, than I was 10 years ago, I still am not always the perfect lady. I was in trouble in school, mostly for talking. I talk, a lot. I tend to be outspoken, I’m honest to fault, and I stand up for what I believe in.
Amelia was diagnosed with NF2 at the age of 4. We are constantly at doctors and very scared of anything new that comes up. Her brain tumor was malignant and a grade 3, which was very scary and turned our lives upside down. We have become stronger by keeping things positive, crossing bridges only when they appear, and keeping everything "yellow" (Amelia's favorite color).
Local stars partner with local dance instructors for the annual 'Dancing with Our Stars' Gala to raise money for a rare genetic disorder; this year’s 10th Anniversary Spectacular will bring total monies raised to over $1 million dollars.