NEW YORK, NY – January 17, 2018 – The temperatures outside may still be in the single digits, but the Children’s Tumor Foundation is looking forward to warmer days ahead, with the announcement of an exciting new 5K race tour called the “I Know a Fighter 5K” to raise awareness and funds for the genetic disorder neurofibromatosis, or NF, which causes tumors to grow on nerves throughout the body. The I Know a Fighter 5Ks will take place in 10 cities across the United States starting this spring.
By Bailey Archer
It started when I was 12 years old. At least, that’s how it felt. Even though I have had this my entire life. Around the time school was out for the summer, I visited a doctor and found out I had this. Now, you’re probably asking yourself: “What is ‘this?'” Well, let me tell you. This ‘thing’ I have is a disorder called neurofibromatosis. Long word right? We also call it NF, so it’s easier on those who can’t pronounce it or spell it. It took me a long time.
On January 20, 2018, the second annual Two Counties, One Cause basketball tournament will take place at Tappan Zee High School in Orangeburg, New York. This charity tournament brings together basketball teams from all over Rockland and Westchester Counties for an evening of basketball competition in the name of NF awareness. Last year, the event raised over $14,000 for NF research.
Tappan Zee High School head basketball coach George Gaine is the driving force behind the charity tournament. Coach Gaine stepped off the court to tell us what inspired him to organize this event.
I was diagnosed with NF in the early 1970s, when I was about 17 or 18. There were a few bumps on me then, and my dear sweet late mother wanted to know what they were. A Navy dermatologist lived next door and knew exactly what neurofibromatosis was.
Over the past 40 years, there have been tremendous advancements in neurofibromatosis (NF) research, many of which can be traced back to research funded by the Children’s Tumor Foundation (CTF). From the very beginning, this Foundation was able to achieve a great deal for patients and families affected by NF.