Fact Sheets & Brochures

Our fact sheets and brochures provide in-depth information about NF and research underway to find a cure. Click on the topics of interest to view and download related materials.

To request bulk copies of fact sheets or brochures, please fill out the request form.

Educational Videos

View educational videos about NF diagnosis, management, and research from the most recent NF Forums (our national family and patient educational gathering).

Please note links will open the Children's Tumor Foundation YouTube channel in a new tab to view the video.

Webinar Series: Ask the Expert

For some patients, it can be challenging to find a local NF expert. With that in mind we’ve launched “Ask the Expert,” an online, interactive webinar series. Videos of NF experts speaking about a variety of topics related to NF are posted online, and viewers are invited to submit questions about the presentation topic. The answers are then posted online along with the video for everyone’s benefit. It is our goal to empower the NF community by providing the latest in NF research and knowledge in an engaging and easy-to-follow format.

NF Forum 2018 Videos

Inspirational Keynotes: Patients' Perspective on the Impact of Patient Input on Future NF Research
Your Data: How You Can Use it to Improve Care and Accelerate Research
About Patient Centered Outcomes Research (PCOR/PCORI)
Patient Empowerment and Engagement! Why now? The CTF Program
Children's Tumor Foundation Research Programs
Clinical Trials for the Treatment of NF: Past, Present and Future; Brigitte Widemann, MD
Clinical Trials for the Treatment of NF: Past, Present and Future; Bruce Korf, MD, PhD
Clinical Trials for the Treatment of NF: Past, Present and Future; Scott Plotkin, MD, PhD
Clinical Trials for the Treatment of NF: Past, Present and Future; Elizabeth Schorry, MD
Clinical Trials for the Treatment of NF: Past, Present and Future: Karin Walsh, PsyD
Comparative Effectiveness Research and Patient Input; Pamela Knight
Comparative Effectiveness Research and Patient Input; Elizabeth Schorry, MD
Comparative Effectiveness Research and Patient Input; D. Bradley Welling, MD, PhD
Cancer Risk in NF1
Cognitive and Social Skills in NF1 - Research and Interventions
Transition from Pediatric to Adult Care
Preserving and Promoting Emotional Health in Patients with NF: Research Findings and Hands-On Skills
Patient Involvement in Response Evaluation in NF and Schwannomatosis (REiNS); Scott Plotkin, MD, PhD
Patient Involvement in Response Evaluation in NF and Schwannomatosis (REiNS); Pam Wolters, PhD
Patient Involvement in Response Evaluation in NF and Schwannomatosis (REiNS); Maureen Hussey, MBA
Patient Involvement in Response Evaluation in NF and Schwannomatosis (REiNS); Andrea Gross, MD
Patient Involvement in Response Evaluation in NF and Schwannomatosis (REiNS); Andrea Gross, MD
Patient Involvement in Response Evaluation in NF and Schwannomatosis (REiNS); Karin Walsh, PsyD
Patient Involvement in Response Evaluation in NF Schwannomatosis (REiNS); Dominique Pichard, MD
Patient Involvement in Response Evaluation in NF and Schwannomatosis (REiNS); Ana-Marie Vranceanu

View entire NF Forum 2018 playlist here

NF Forum 2016 Videos

Overview on Resilience, Positive Psychology, Research, and Facilitating Resilience
Using Your Brain to Tackle Pain
Neurosurgical Treatment of Brain and Spinal Tumors in NF1, NF2, and Schwannomatosis
Communications Options for Hearing Loss
Questions about NF Panel
Medical Treatment of Plexiform Neurofibromas in NF
Clinical and Imaging Manifestations in NF2 and Schwannomatosis
NF1, A Partnership Between Patient and Physician

View entire NF Forum 2016 playlist here

NF Forum 2015 Videos

Pregnancy and NF
Everything you Wanted to Know About NF
Navigating Life with NF: a Coping Skills Panel
Learning Disabilities Throughout the Lifespan
Adapting to Hearing Loss
Maximizing Physical Function in NF2
Adult Medical Care
Coping with Pain
Acceptance Based Approach to Fostering Social Development
Update on Types of Drugs and Clinical Trials for NF1 and NF2
Understanding Clinical Trials - 10 Questions to Ask
Clinical Trials for Cognitive/Behavioral Issues in NF
Update on Bevicizumab for Hearing Improvement
Genetic Testing
10 Tips for Working Effectively with Your NF Team

View entire NF Forum 2015 playlist here