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It is important to see healthcare providers who are familiar with NF, or provide resources about NF to your general practitioner.

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NF Clinic Network

The NF Clinic Network (NFCN) is the first nationwide network dedicated to improving clinical care and establishing best practices for treating those living with NF. The NFCN recognizes clinics in the US and Canada that provide comprehensive medical care to individuals with NF, foster patient education, and encourage participation in clinical research trials and the NF registry.

20,000

Patients each year

70

Clinics in the NF Clinic Network

11,000

Patients enrolled in the NF Registry

Find a Doctor

It is important to see healthcare providers who are familiar with NF, and there are several things to consider when choosing an NF provider. If you live in the US or Canada, to find an NF clinic near you, below is a listing of our NFCN clinics that can be filtered by different search fields. You may select clinics by location, patient age, clinical areas of specialty, and NF type, which includes neurofibromatosis type 1 (NF1), and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2. All providers listed are members of the NF Clinic Network (NFCN).

If you do not find an NF provider in your area, please refer to the NF Collective for additional US-based listings or CTF Europe for NF providers in Europe. We continue to collaborate with clinicians in the global community. Please contact us for providers that may be available in your area.

If you do not have an NF clinic in your area, we encourage you to provide resources about NF to your primary care provider.

Although CTF makes every attempt to report current and accurate data, we cannot guarantee all information on our site.

If you need to update your clinic’s listing, please use this form to request the change(s).

Nf collective logo on a white background.

NF Collective

The NF Collective is a group of organizations dedicated to improving the lives of NF patients and their families by providing accurate and reliable information about NF. The Children’s Tumor Foundation was the first national NF organization, started in 1978. Since that time, a number of organizations have been created to address various needs within the NF community, each with a specific focus, but all share the common goal of curing NF.

Resources for Doctor Visits

Talking With Your Pediatrician

Description

This chapter from CTF's NF Parent Guidebook offers tips to parents when speaking with a child's pediatrician.

This chapter from CTF's NF Parent Guidebook offers tips to...

CTF Patient Brochures

Description

A downloadable, printable one-sheet to share with individuals and groups interested in patient educational materials from the Children's Tumor Foundation

A downloadable, printable one-sheet to share with individuals and groups...

Finding a Healthcare Professional

Description

A checklist for individuals working to select an appropriate NF healthcare professional.

A checklist for individuals working to select an appropriate NF...

NF Clinics in Europe

We understand how difficult it can be to find healthcare professionals who have experience diagnosing and caring for NF patients. Below you can search for clinics in Europe.