Children's Tumor
Foundation Research
Published in
New England Journal
of Medicine

Our vision is to end NF

The Children's Tumor Foundation's mission is to drive research, expand knowledge, and advance care for the NF community.

  

Research for a cure

Since its formation, the Children’s Tumor Foundation has been crucial to the development of solid scientific data about the genetic disorder neurofibromatosis (NF). Thanks to the generosity of our donors and supporters, we are breaking through barriers and forging the pathway that will lead to a cure.

Get to know our NF Heroes

Latest News

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An NF Mom Reflects on a Her Son’s Path to Progress

May 22, 2017, Posted in NF Hero, NF1

By Kelly Carpenter

As the youngest of 3 boys, Travis’ biggest concerns should have been keeping up with his brothers and what games they could play. As parents, our biggest concern should have been that we were outnumbered...3 kids to 2 parents. However, life brought a different set of challenges. Travis' first café au lait spots appeared shortly before 4 months of age and the NF1 diagnosis by our pediatrician followed at 6 months. To see his medical issues on paper, you would never guess how well he functions in the world. His spirit remains positive throughout all the challenges he faces due to NF.

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Shining a Light on NF with Billboards and Signage

May 19, 2017, Posted in Awareness, Community

Shining a Light on NF is more than buildings and bridges glowing in blue and green, it's also a wonderful opportunity to raise awareness through billboards, posters, and digital signage! We thank our partners across the country for donating space and time during NF Awareness Month:

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Synodos for Schwannomatosis Inaugural Meeting

May 17, 2017, Posted in Collaborations, Latest News, Schwannomatosis, Science

On May 1, 2017, an international consortium of clinicians and scientists from multiple disciplines met in Toronto, Canada to officially launch the Synodos for Schwannomatosis project. Led by Dr. Gelareh Zadeh from University of Toronto and Dr. Laura Papi from University of Florence, Italy, the project aims to perform an extensive molecular analysis of schwannomatosis tumor samples to identify new therapeutic targets, and advance the understanding and management of the disease, with special focus on pain.

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Today is World NF Awareness Day

May 17, 2017, Posted in Awareness, Community, Latest News, Press Release

On May 17, hundreds of landmarks in the U.S., U.K., Canada, and Austria will “Shine a Light on NF” to raise awareness for rare genetic disorder

NEW YORK – May 17, 2017 – The Children’s Tumor Foundation is pleased to announce that in recognition of NF Awareness Month, buildings, bridges, monuments, and landmarks across the globe will show their support in the fight against neurofibromatosis (NF) by lighting up in blue and green, the official colors of NF. 

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