NF affects
1 in every
3,000 people

Our vision is to end NF

The Children's Tumor Foundation's mission is to drive research, expand knowledge, and advance care for the NF community.


Research for a cure

Since its formation, the Children’s Tumor Foundation has been crucial to the development of solid scientific data about the genetic disorder neurofibromatosis (NF). Thanks to the generosity of our donors and supporters, we are breaking through barriers and forging the pathway that will lead to a cure.

Get to know our NF Heroes

Latest News

NF NEWS Vol. IV 2016 is now online

Dec 5, 2016, Posted in Awareness, Latest News, Newsletter

The new issue of NF News, the official newsletter of the Children's Tumor Foundation, is now available! In this issue you will find: 

- 2017 Holiday Campaign: Together, we believe we can find an end to NF
- Successful Galas: Evenings to remember across the country!
- New Year, New Strategies: Looking forward in research priorities 
- MEK Inhibitor Clinical Trial Update: Meet the Moss Family
- And so much more!

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Stories of NF: Philip M.

Dec 1, 2016, Posted in NF Hero, NF1

“Little Philip continues to be enrolled in the AZD6244 MEK trial through the National Institutes of Health. This drug has been the answer to many prayers for us. At the one year mark since enrolling, Philip’s tumor is now 36% smaller. "

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Dr. Brigitte Widemann now Chief, Pediatric Oncology Branch at the NCI

Nov 30, 2016, Posted in Latest News, Science

We are overjoyed to congratulate Dr. Brigitte Widemann, the Foundation's 2016 Children's Medical Humanitarian Award recipient, on her well-deserved promotion to Chief, Pediatric Oncology Branch at the National Cancer Institute's Center for Cancer Research.

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Giving Tuesday

Nov 29, 2016, Posted in Community, Fundraiser

The Children's Tumor Foundation proudly participates in #GivingTuesday, a global day of giving. You can join the movement by making a donation to the Children's Tumor Foundation, and inspire others to give by sharing #givingtuesday on social media.

Give love. Give thanks.
Give big. Give small.
Give money. Give time.

Your every action inspires hope.

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