Our website has had a makeover! We're proud to announce the new ctf.org, your destination for NF information, news, events, and what we're doing to END NF.More >
The Children's Tumor Foundation's mission is to drive research, expand knowledge, and advance care for the NF community.
Since its formation, the Children’s Tumor Foundation has been crucial to the development of solid scientific data about the genetic disorder neurofibromatosis (NF). Thanks to the generosity of our donors and supporters, we are breaking through barriers and forging the pathway that will lead to a cure.
Last year, the Children's Tumor Foundation announced Synodos for NF1, a unique consortium bringing together a multidisciplinary team of scientists, clinicians, technicians, patients and other experts from world-class labs at academic and medical centers. These scientists have pledged to work together and share unpublished information, datasets, and results, thereby accelerating the drug development process.More >
You are invited to participate in a study of the effects of social media and support groups on feelings of isolation and self-esteem that may arise in individuals with neurofibromatosis (NF). Participation involves completing an online questionnaire. The questionnaire also assesses the feelings that individuals in the NF community have towards the representation of the NF in social media.More >