May is
NF Awareness
Month!

Our vision is to end NF

The Children's Tumor Foundation's mission is to drive research, expand knowledge, and advance care for the NF community.

  

Research for a cure

Since its formation, the Children’s Tumor Foundation has been crucial to the development of solid scientific data about the genetic disorder neurofibromatosis (NF). Thanks to the generosity of our donors and supporters, we are breaking through barriers and forging the pathway that will lead to a cure.

Get to know our NF Heroes

Latest News

Stories_of_NF_-_Brandon_300x400

Stories of NF: Brandon

May 23, 2018, Posted in NF Hero, NF1

Brandon was diagnosed with NF at 6 months. It has caused his left bone to be bowed and he has had multiple surgeries that resulted in amputating his leg. His NF also caused his speech to be delayed, as well, which he goes to speech therapy for.

More >

New Research Investigates Potential Therapeutics for NF2

May 23, 2018, Posted in CTF in the News, Latest News, NF2, Published, Science

By Salvatore La Rosa, VP Research and Development

Early investments from the Children’s Tumor Foundation are paying off and delivering innovative and impactful research. It’s great to see research moving forward thanks to the support of both private and public funding. Our philosophy of betting on high-risk high-reward projects is proving successful and will eventually help us realize our vision of ending NF.

More >
Byline_from_Jordan_Prochnow_2

My Brother is a Fighter

May 21, 2018, Posted in Awareness, NF Hero, NF1

By Jordan Prochnow

When my brother Jackson was born, I was his first visitor in the hospital. Before my stepmom was out of the delivery room I was there, a candy cane Blizzard from Dairy Queen in my hand, excited to meet my first sibling. I was ten years old and had been waiting for a brother or sister my entire life and now he was here.

More >

Children’s Tumor Foundation Announces Today is World NF Awareness Day For 2 Million People Around the Globe

May 17, 2018, Posted in Awareness, Community, Latest News, Press Release

On May 17, hundreds of landmarks around the world will “Shine a Light on NF” to raise awareness for genetic disorder that causes tumors and has no cure at this time

NEW YORK – May 17, 2018 – The Children’s Tumor Foundation is pleased to announce that in recognition of NF Awareness Month architectural icons across the globe will show their support in the fight against neurofibromatosis (NF) by lighting up in blue and green, the official colors of the NF cause.

More >

Get the latest news and announcements in our newsletter: