NF affects
1 in every
3,000 people

Our vision is to end NF

The Children's Tumor Foundation's mission is to drive research, expand knowledge, and advance care for the NF community.


Research for a cure

Since its formation, the Children’s Tumor Foundation has been crucial to the development of solid scientific data about the genetic disorder neurofibromatosis (NF). Thanks to the generosity of our donors and supporters, we are breaking through barriers and forging the pathway that will lead to a cure.

Get to know our NF Heroes

Latest News


Stories of NF: Kaiden D.

Sep 18, 2017, Posted in NF Hero, NF1

Did you know that the name Kaiden means fighter or warrior? Even though I am only 9, I have been a fighter my entire life. On April 25, 2016, I had to have my leg amputated due to complications with NF. Losing my leg was very hard for me and everyone in my family. We knew that once the surgery took place, things would never be the same again.

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Stories of NF: Andrea

Sep 12, 2017, Posted in NF Hero, NF1

NF1 has been impacting my life since I can remember. I had an optic pathway glioma in my right optic nerve which, when I was younger, pushed my right eye in a weird shape and position in my face (now prosthetic).

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Advocacy Update

Sep 11, 2017, Posted in Advocacy

Today, the Senate is expected to begin consideration of S. 1519, the FY 2018 National Defense Authorization Act (NDAA).  As reported by the Senate Armed Services Committee, S. 1519 would have negative impacts on U.S. Department of Defense medical research programs.  The Children’s Tumor Foundation has actively and continuously engaged for the past months in many avenues of bipartisan advocacy to nullify these specific provisions in the legislation, working with the Foundation’s Capitol Hill allies, the Defense Health Research Consortium, and other stakeholders to ensure no impact to the Department of Defense medical research programs. 

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Moxie & Sparx Introduce the NF Parent Guidebook

Sep 7, 2017

Moxie and Sparx will be your guides as your family completes The NF Parent Guidebook: How to Help Children With Learning Challenges Associated With Neurofibromatosis Type 1.  They will also lead you through some fun activities for you to engage in with your child.

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