NF affects
1 in every
3,000 people

Our vision is to end NF

The Children's Tumor Foundation's mission is to drive research, expand knowledge, and advance care for the NF community.


Research for a cure

Since its formation, the Children’s Tumor Foundation has been crucial to the development of solid scientific data about the genetic disorder neurofibromatosis (NF). Thanks to the generosity of our donors and supporters, we are breaking through barriers and forging the pathway that will lead to a cure.

Get to know our NF Heroes

Latest News


Stories of NF: Travis C.

Dec 6, 2017, Posted in NF Hero, NF1

Travis Carpenter was diagnosed with NF1 at 6 months. Years of visiting different specialists and trying different treatments did not yield the progress Travis’ parents and doctors were looking for. Read more about that part of the journey here. However, things started to turn around in November 2015, when Travis enrolled in the MEK-inhibitor AZD6244 (Selumetinib) clinical trial at the NIH.

While not yet a cure, Travis’ life has improved with enhanced mobility and better health. We asked Kelly, Travis’ mom, to tell us more about Travis’ progress and how it has impacted his life at the young age of 10.

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2018 Young Investigator Award Applications Opening Dec. 11

Dec 4, 2017, Posted in Awards, Science

The Pre-Application to the 2018 Young Investigator Award will be available December 11, 2017.

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Q&A: NF Mom Kim Laret on Organizing a Powderpuff Game to End NF

Nov 30, 2017, Posted in Awareness, Community, Fundraiser, NF1

In October 2017, Ohio NF Mom and CTF volunteer Kim Laret organized the first powderpuff game to raise money for critical NF research at the Southwest Licking Youth Football and Cheer Football Field.

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Choose the UN in Your Approach

Nov 20, 2017, Posted in Awareness, Latest News, Video

To End NF, we need an UN-attitude.

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