Children's Tumor
Foundation Research
Published in
New England Journal
of Medicine

Our vision is to end NF

The Children's Tumor Foundation's mission is to drive research, expand knowledge, and advance care for the NF community.

  

Research for a cure

Since its formation, the Children’s Tumor Foundation has been crucial to the development of solid scientific data about the genetic disorder neurofibromatosis (NF). Thanks to the generosity of our donors and supporters, we are breaking through barriers and forging the pathway that will lead to a cure.

Get to know our NF Heroes

Latest News

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From Process to Progress: Children’s Tumor Foundation Annual Report

Jun 22, 2017, Posted in Latest News

We’re proud to announce that our latest annual report – titled From Process to Progress – is now available to read online.  Outlining the Foundation’s activities over the past year, from research to awareness to patient support, the annual report highlights a vibrant NF community that is making great progress in the fight to end NF.  Additionally, the financial pages offer transparency on how funds are spent, earning the Foundation a four-star rating from Charity Navigator once again.  And of course, none of this is possible without the support of all of you – the thousands of donors who give to ensure that NF research and programs continue.

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Q&A: NF Mom Kristy Stewart on the End NF Car Hitting the Road in Kentucky

Aug 22, 2017, Posted in Awareness, Community, NF Hero, NF1

On August 10, 2017, the 65th Annual NIBROC Parade in Corbin, Kentucky featured the debut of a very special car driven by Wallen’s Towing & Recovery, a local Corbin automotive company. The parade is part of a three day festival that includes activities for all age groups and interests.

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Speaking Out in School Prepared Me to Speak Up for My Son

Aug 17, 2017, Posted in Community, NF Hero, NF1

By LaShannon Spencer

I am very loud. Some people might even say that I am obnoxious. Although, I’m less crude now, than I was 10 years ago, I still am not always the perfect lady. I was in trouble in school, mostly for talking. I talk, a lot. I tend to be outspoken, I’m honest to fault, and I stand up for what I believe in.

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Stories of NF: Amelia N.

Aug 16, 2017, Posted in NF Hero, NF2

Amelia was diagnosed with NF2 at the age of 4. We are constantly at doctors and very scared of anything new that comes up. Her brain tumor was malignant and a grade 3, which was very scary and turned our lives upside down. We have become stronger by keeping things positive, crossing bridges only when they appear, and keeping everything "yellow" (Amelia's favorite color).

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