NF affects
1 in every
3,000 people

Our vision is to end NF

The Children's Tumor Foundation's mission is to drive research, expand knowledge, and advance care for the NF community.


Research for a cure

Since its formation, the Children’s Tumor Foundation has been crucial to the development of solid scientific data about the genetic disorder neurofibromatosis (NF). Thanks to the generosity of our donors and supporters, we are breaking through barriers and forging the pathway that will lead to a cure.

Get to know our NF Heroes

Latest News


Stories of NF: Philip M.

Dec 1, 2016, Posted in NF Hero, NF1

“Little Philip continues to be enrolled in the AZD6244 MEK trial through the National Institutes of Health. This drug has been the answer to many prayers for us. At the one year mark since enrolling, Philip’s tumor is now 36% smaller. "

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Dr. Brigitte Widemann now Chief, Pediatric Oncology Branch at the NCI

Nov 30, 2016, Posted in Latest News, Science

We are overjoyed to congratulate Dr. Brigitte Widemann, the Foundation's 2016 Children's Medical Humanitarian Award recipient, on her well-deserved promotion to Chief, Pediatric Oncology Branch at the National Cancer Institute's Center for Cancer Research.

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Giving Tuesday

Nov 29, 2016, Posted in Community, Fundraiser

The Children's Tumor Foundation proudly participates in #GivingTuesday, a global day of giving. You can join the movement by making a donation to the Children's Tumor Foundation, and inspire others to give by sharing #givingtuesday on social media.

Give love. Give thanks.
Give big. Give small.
Give money. Give time.

Your every action inspires hope.

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Couple Donates 50th Wedding Anniversary Gifts to End NF

Nov 23, 2016, Posted in Fundraiser

On October 29, 2016, Mr. and Mrs. Anthony and Emily Vallelong celebrated their 50th wedding anniversary on Staten Island in New York.

In lieu of gifts, and the classic gift of gold for 50 years, the happily married couple requested their guests make a donation to the Children’s Tumor Foundation. They chose CTF as a way to honor their friendship with Emily Vallelong’s best friend, Lydia Parker, and Lydia’s three grandchildren who live with NF.

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