NF affects
1 in every
3,000 people
worldwide.

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Our vision is to end NF

The Children's Tumor Foundation's mission is to drive research, expand knowledge, and advance care for the NF community.

  

Research for a cure

Since its formation, the Children’s Tumor Foundation has been crucial to the development of solid scientific data about the genetic disorder neurofibromatosis (NF). Thanks to the generosity of our donors and supporters, we are breaking through barriers and forging the pathway that will lead to a cure.

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Get to know our NF Heroes

Meet Them

Fundraising Programs

NF WALK
NF ENDURANCE
CLASSROOMS FOR A CURE
DO-IT-YOURSELF

Upcoming Events

Latest News

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From Process to Progress: Children’s Tumor Foundation Annual Report

Jun 22, 2017, Posted in Latest News

We’re proud to announce that our latest annual report – titled From Process to Progress – is now available to read online.  Outlining the Foundation’s activities over the past year, from research to awareness to patient support, the annual report highlights a vibrant NF community that is making great progress in the fight to end NF.  Additionally, the financial pages offer transparency on how funds are spent, earning the Foundation a four-star rating from Charity Navigator once again.  And of course, none of this is possible without the support of all of you – the thousands of donors who give to ensure that NF research and programs continue.

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Stories of NF: Amelia N.

Aug 16, 2017, Posted in NF Hero, NF2

Amelia was diagnosed with NF2 at the age of 4. We are constantly at doctors and very scared of anything new that comes up. Her brain tumor was malignant and a grade 3, which was very scary and turned our lives upside down. We have become stronger by keeping things positive, crossing bridges only when they appear, and keeping everything "yellow" (Amelia's favorite color).

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Arkansas Celebrities Perform in Dance Competition to Raise Money for Children’s Tumor Foundation

Aug 15, 2017, Posted in Community, Fundraiser, Galas, Press Release

Local stars partner with local dance instructors for the annual 'Dancing with Our Stars' Gala to raise money for a rare genetic disorder; this year’s 10th Anniversary Spectacular will bring total monies raised to over $1 million dollars.

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EMBO Molecular Medicine Highlights CTF’s Innovative Research Model

Aug 7, 2017, Posted in Latest News, Published, Science

The August issue of EMBO Molecular Medicine features an article authored by Children’s Tumor Foundation President and Chief Scientific Officer Annette Bakker, PhD, and Salvatore La Rosa, PhD, Children’s Tumor Foundation VP, Research & Development about the larger role foundations are playing within the rare disease research ecosystem. EMBO Molecular Medicine is a peer-reviewed, online open access journal dedicated to a new research discipline at the interface between clinical research and basic biology.

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