Children's Tumor
Foundation Research
Published in
New England Journal
of Medicine

Our vision is to end NF

The Children's Tumor Foundation's mission is to drive research, expand knowledge, and advance care for the NF community.


Research for a cure

Since its formation, the Children’s Tumor Foundation has been crucial to the development of solid scientific data about the genetic disorder neurofibromatosis (NF). Thanks to the generosity of our donors and supporters, we are breaking through barriers and forging the pathway that will lead to a cure.

Get to know our NF Heroes

Latest News


Stories of NF: AJ Z.

Jun 26, 2017, Posted in NF Hero, NF1

AJ was diagnosed with NF1 when he was just 6 months old. Having NF means that AJ has to try harder to do things that most kids might think are super easy. It does not stop him though. AJ is a thinker and a do-er. If he can't do something one way, he'll keep trying until he figures out a way that he can. AJ thinks that the unknown is the scariest part of having NF, but he does not plan on letting it stop him from reaching for his goals though.

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Photo Contest 2017 Winner Announced

Jun 23, 2017, Posted in Awareness, Community, NF Hero, NF1

We’re excited to announce the winner of the 2017 NF Awareness Month “Where in the World do you End NF?” photo contest!

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From Process to Progress: Children’s Tumor Foundation Annual Report

Jun 22, 2017, Posted in Latest News

We’re proud to announce that our latest annual report – titled From Process to Progress – is now available to read online.  Outlining the Foundation’s activities over the past year, from research to awareness to patient support, the annual report highlights a vibrant NF community that is making great progress in the fight to end NF.  Additionally, the financial pages offer transparency on how funds are spent, earning the Foundation a four-star rating from Charity Navigator once again.  And of course, none of this is possible without the support of all of you – the thousands of donors who give to ensure that NF research and programs continue.

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2017 NF Conference Program Book Now Available

Jun 22, 2017

The 2017 NF Conference program book is now available.

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