NF affects
1 in every
3,000 people

Our vision is to end NF

The Children's Tumor Foundation's mission is to drive research, expand knowledge, and advance care for the NF community.


Research for a cure

Since its formation, the Children’s Tumor Foundation has been crucial to the development of solid scientific data about the genetic disorder neurofibromatosis (NF). Thanks to the generosity of our donors and supporters, we are breaking through barriers and forging the pathway that will lead to a cure.

Get to know our NF Heroes

Latest News


Introducing the New

Oct 17, 2016, Posted in Latest News

Our website has had a makeover! We're proud to announce the new, your destination for NF information, news, events, and what we're doing to END NF.

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Survey on Social Media and NF

Oct 24, 2016, Posted in Outside Opportunities, Science

You are invited to participate in a study of the effects of social media and support groups on feelings of isolation and self-esteem that may arise in individuals with neurofibromatosis (NF). Participation involves completing an online questionnaire. The questionnaire also assesses the feelings that individuals in the NF community have towards the representation of the NF in social media.

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Kendra Scott Supports NF Research

Oct 21, 2016, Posted in Community, Fundraiser

Get a jump start on your holiday gifts with a fun shopping event that supports the Children’s Tumor Foundation!

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Meet the 2017 NF Ambassador

Oct 13, 2016, Posted in Galas, Latest News, NF Hero, NF1

On Wednesday, October 19 at the New York Gala, Sarah will be honored as the 2017 Children’s Tumor Foundation Ambassador. This award is bestowed upon an individual with NF to recognize their courage living the disorder, and their personal efforts to further the Foundation goals of research, public awareness and patient support. We asked Sarah to tell us more about her journey and her dreams for the future.

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