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My Kind of Beautiful

Oct 13, 2017, Posted in Awareness, NF Hero, NF1

By Angela Velasquez

I have an atypical face; my face is not symmetrical. When I am out in public, strangers tend to look at me with a puzzled gaze. They stare because I have a facial disfigurement due to neurofibromatosis. My right eye, which is a prosthetic, protrudes out and overall the right side of my face is slightly lower than that of my left. So, yes, my face is atypical which causes for a lot of wondering eyes.

Stories of NF: Nicole W.

Oct 4, 2017, Posted in NF Hero, NF1

“I was diagnosed when I was about 18 months old. A nurse recognized the cafe au lait spots and recommended my parents bring me to a neurologist. NF has triggered severe chronic migraines for most of my life. I missed many days of school because of the migraines and I feared I wouldn't be able to work due to them. I worked up the courage to try working when I was old enough and found that I was able to do it despite the migraines; in fact, I began having migraines less often after I stopped letting them hold me back."

CTF Now Accepts Donations Via Text Message

Sep 26, 2017, Posted in Awareness, Fundraiser, Latest News

The Children's Tumor Foundation is pleased to share that we can now accept donations via text message. Important information is included below about making a donation thru your mobile device.  

The Children’s Tumor Foundation and PLOS ONE Announce a New Funder-Publisher Partnership

The Children’s Tumor Foundation (CTF) and the scientific journal PLOS ONE are collaborating on a new funding program in the area of neurofibromatosis (NF) research. The new initiative, called the Drug Discovery Initiative Registered Report (DDIRR) 2017 Awards, is a funder-publisher partnership to integrate the Registered Reports model in the grant application process.