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IMI Launches Significant Neurofibromatosis Call for Patient-Centric Drug Development

The Children’s Tumor Foundation is an Associated Partner of the European-based Innovative Medicines Initiative

The Innovative Medicines Initiative (IMI), a jointly funded partnership between the European Union (EU) and the European Federation of Pharmaceutical Industries and Associations (EFPIA), will soon issue a call for an integrated research platform enabling patient-centric drug development.

An 11-Year-Old’s Vision to Find a Cure

Jul 18, 2018

In 2014, when Chloe Peterson of Yakima Valley, Washington was just 11 years old, while her tween peers were busy checking out Disney’s Frozen, Chloe was finding a way to make a difference. She says, “I wanted to do something to spread awareness for local charities and causes close to my heart.”

End NF with Ian Desmond

Jul 9, 2018, Posted in Awareness, Community

Going to a Colorado Rockies baseball game?

Whether you are planning to attend a Rockies game at home (at Coors Field in Denver) or on the road, you may be able to meet NF Champion Ian Desmond to express your gratitude for his support through awareness to the NF cause and personal donations for research to Children's Tumor Foundation!

Photo Contest 2018 Winner Announced

Jul 2, 2018

We’re excited to announce the winner of the 2018 NF Awareness Month I Know a Fighter photo contest!

Stories of NF: Barry L.

Jul 2, 2018, Posted in NF Hero, NF1

I am 66 years old. I have NF1 and it causes bouts of depression, but I deal with that. I am a fortunate man. I taught school for 35 years having earned my Bachelor’s and Master’s degrees. I am married with no children.