NF Hero Kendall Reeve and her family were profiled in Fishers, a local magazine released by the Towne Post Networkfor Indiana residents.
Running for Kendall: Family Bringing Cupid’s Undie Run to Indy to Benefit the Children’s Tumor Foundation
The new issue of NF News, the official newsletter of the Children's Tumor Foundation, is now available! In this issue you will find:
- New Pharma Partnership
- Synodos Progress
- Believe We Can End NF Campaign
- Gala Highlights
- Stories of NF
- And so much more!
Travis Carpenter was diagnosed with NF1 at 6 months. Years of visiting different specialists and trying different treatments did not yield the progress Travis’ parents and doctors were looking for. Read more about that part of the journey here. However, things started to turn around in November 2015, when Travis enrolled in the MEK-inhibitor AZD6244 (Selumetinib) clinical trial at the NIH.
While not yet a cure, Travis’ life has improved with enhanced mobility and better health. We asked Kelly, Travis’ mom, to tell us more about Travis’ progress and how it has impacted his life at the young age of 10.
The Pre-Application to the 2018 Young Investigator Award will be available December 11, 2017.
In October 2017, Ohio NF Mom and CTF volunteer Kim Laret organized the first powderpuff game to raise money for critical NF research at the Southwest Licking Youth Football and Cheer Football Field.