We’re proud to announce that our latest annual report – titled From Process to Progress – is now available to read online. Outlining the Foundation’s activities over the past year, from research to awareness to patient support, the annual report highlights a vibrant NF community that is making great progress in the fight to end NF. Additionally, the financial pages offer transparency on how funds are spent, earning the Foundation a four-star rating from Charity Navigator once again. And of course, none of this is possible without the support of all of you – the thousands of donors who give to ensure that NF research and programs continue.
By Kelly Rulle
Recently, I was asked the following, “What's one "survival tip" you'd like to share with other people living with neurofibromatosis (NF)?” So many things ran through my mind: dealing with bullies, hurtful comments, or painful days, how could I pick just one? But if I had to say just one thing, it would be, “Learn!”
Every August the Littlest Tumor Foundation hosts the NF Family Wellness Retreat in Clintonville, WI. This year, the retreat will take place from August 11-14 at the Imago Dei Village and is free of charge. The mission at the retreat is to strengthen the family unit, build compassion, and address NF manifestations through practicing a healthy lifestyle.
Synodos for Schwannomatosis, an international consortium of clinicians and scientists from multiple disciplines, was launched at a full team meeting in Toronto, Canada on May 1, 2017. At the conclusion of this inaugural meeting, we met with the leaders of this exciting new consortium, who spoke candidly about the meeting, schwannomatosis research, and what is at stake for this important project.
We are thrilled to announce that Children’s Tumor Foundation President and Chief Scientific Officer Annette Bakker, PhD, has been announced as a recipient of a 2017 RARE Champion of Hope award.