Introducing the New

Oct 17, 2016, Posted in Latest News

Our website has had a makeover! We're proud to announce the new, your destination for NF information, news, events, and what we're doing to END NF.

Kendra Scott Supports NF Research

Oct 21, 2016, Posted in Community, Fundraiser

Get a jump start on your holiday gifts with a fun shopping event that supports the Children’s Tumor Foundation!

Meet the 2017 NF Ambassador

Oct 13, 2016, Posted in Galas, Latest News, NF Hero, NF1

On Wednesday, October 19 at the New York Gala, Sarah will be honored as the 2017 Children’s Tumor Foundation Ambassador. This award is bestowed upon an individual with NF to recognize their courage living the disorder, and their personal efforts to further the Foundation goals of research, public awareness and patient support. We asked Sarah to tell us more about her journey and her dreams for the future.

Children’s Tumor Foundation Hosts Annual Gala, “Imagine a World Without NF,” to Support Rare Genetic Disorder

Oct 11, 2016, Posted in Fundraiser, Galas, Latest News, Press Release

NEW YORK – On Wednesday, October 19, 2016, leading New York business leaders, together with friends, families and fundraisers, will gather at Current on Pier 59 for the annual Children’s Tumor Foundation New York Gala. This year’s theme asks everyone to “Imagine a World Without NF.” Funds raised will support research into neurofibromatosis (NF), a genetic disorder that causes tumors to grow on nerves throughout the body and affects 1 in 3,000 births. There is currently no cure.

Children’s Tumor Foundation Co-Sponsors Gathering at the NIH to focus on MPNSTs

Oct 4, 2016, Posted in Collaborations, NF1, Science

The Children’s Tumor Foundation is pleased to announce that we will be co-sponsoring, in conjunction with the Center for Cancer Research and the Division of Cancer Epidemiology and Genetics of the National Cancer Institute (NCI) at the National Institutes of Health (NIH), a workshop that brings together international experts on the many aspects of malignant peripheral nerve sheath tumors (MPNSTs), which is a rare cancer that can develop in a small subset of patients with NF1.

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