Shining a Light on NF is more than buildings and bridges glowing in blue and green, it's also a wonderful opportunity to raise awareness through billboards, posters, and digital signage! We thank our partners across the country for donating space and time during NF Awareness Month:
On May 17, hundreds of landmarks in the U.S., U.K., Canada, and Austria will “Shine a Light on NF” to raise awareness for rare genetic disorder
NEW YORK – May 17, 2017 – The Children’s Tumor Foundation is pleased to announce that in recognition of NF Awareness Month, buildings, bridges, monuments, and landmarks across the globe will show their support in the fight against neurofibromatosis (NF) by lighting up in blue and green, the official colors of NF.
A former British Army Physical Training Instructor, NF Endurance athlete Craig Noble is once again dedicating his competitive racing efforts to the Children's Tumor Foundation, this time in the epic Race Across America (RAAM). Craig is part of a four-person team raising funds and awareness for four different charities. Racing day and night against the clock and other teams, they will try to cycle over 3,000 miles, coast to coast across 12 states, in one week. The race starts in Oceanside, California on Tuesday, June 13, and finishes in Annapolis, Maryland on Saturday, June 17 (or whenever the team crosses the finish line!). Craig took a brief break from training to tell us about his passion for competitive racing and what it means to compete in the name of CTF.
The new issue of NF News, the official newsletter of the Children's Tumor Foundation, is now available! In this issue you will find:
- MEK Clinical Trial Published in New England Journal of Medicine
- CRA Awardee Receives $1.5M to Continue Research
- NF Clinic Network Grows
- Stories of NF
- Awareness Month: What You Can Do
- And so much more!
Raising awareness for neurofibromatosis can happen anytime, anywhere. Whether you’re on vacation, at work, at school or just hanging out in your front yard, we know you’re on call 24/7/365, telling others what NF is, how it impacts your life and the significance of funding research. Enter the 2017 Children’s Tumor Foundation NF Awareness Month photo contest and show us Where in the world do you end NF!