End NF with Ian Desmond

Jul 9, 2018, Posted in Awareness, Community

Going to a Colorado Rockies baseball game?

Whether you are planning to attend a Rockies game at home (at Coors Field in Denver) or on the road, you may be able to meet NF Champion Ian Desmond to express your gratitude for his support through awareness to the NF cause and personal donations for research to Children's Tumor Foundation!

Proclamations 2018

May 31, 2018, Posted in Awareness, Community

THANK YOU to the cities and states that have proclaimed May as NF Awareness Month or May 17 as World NF Awareness Day.


Shine a Light on NF 2018

May 31, 2018, Posted in Awareness, Community

Shine a Light on NF brings NF awareness into the community by lighting up buildings, bridges and monuments in blue and green.


Volunteer Leadership Council Awards Luncheon

May 30, 2018, Posted in Awareness, Community

Earlier this month, in celebration of the Foundation’s 40th Anniversary, 62 registered members of the Volunteer Leadership Council (VLC), our most active and dedicated volunteers, gathered for their annual Leadership Training Conference in Atlanta, GA.  The conference allows VLC members the opportunity to have face-to-face interactions with staff and one another. They gain new insights about the latest scientific research, CTF program enhancements and marketing initiatives, as well as to have time to share with and learn from each other.


My Brother is a Fighter

May 21, 2018, Posted in Awareness, NF Hero, NF1

By Jordan Prochnow

When my brother Jackson was born, I was his first visitor in the hospital. Before my stepmom was out of the delivery room I was there, a candy cane Blizzard from Dairy Queen in my hand, excited to meet my first sibling. I was ten years old and had been waiting for a brother or sister my entire life and now he was here.

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