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Dan Gilbert dedicates NCAA bracket to CTF

Mar 17, 2017, Posted in Awareness, Fundraiser

March Madness is in the air! For the third consecutive year, CTF Board Member, Quicken Loans founder and Cleveland Cavaliers owner Dan Gilbert has dedicated his NCAA bracket to the Children's Tumor Foundation!

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Cupid’s Undie Run: Putting the Hilarity in Charity

Feb 22, 2017, Posted in Awareness, Community, Fundraiser

This month marks the eighth consecutive Cupid’s Undie Run to benefit the Children’s Tumor Foundation. Cupid’s has grown in leaps and bounds since 2010, when participants raised $10,000 to now, in 2017, when they’ve brought their eight year total to over $10 million for NF research. Everyone’s favorite Valentine’s-themed party has shown us all once again what an amazing group of people can do for the NF cause.

International Organizations Work Together to “Shine a Light on NF” Around the Globe

Feb 1, 2017, Posted in Awareness, Community, Latest News, Press Release

On May 17, hundreds of landmarks in the U.S., U.K., Canada, and Australia will “Shine a Light on NF” to raise awareness for rare genetic disorder

NEW YORK – February 1, 2017 – The Children’s Tumor Foundation is pleased to announce that in May, in honor of NF Awareness Month, buildings, bridges, monuments, and landmarks across the globe will show their support in the fight against neurofibromatosis (NF) by lighting up in blue and green, the official colors of NF. NF is a genetic disorder that affects 1 in 3,000 births of all populations, and causes tumors to grow on nerves throughout the body. It can lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. There is not yet a cure.

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NF Hero in the News: Tulsa World profiles Jerry Willman

The start of the month of February means one thing… Cupid’s Undie Run events taking place across the country! As participants continue shedding articles of clothing and raising money to support NF research, Tulsa World spoke with Jerry Willman about finding out he had neurofibromatosis, what it’s like living with NF and why he keeps running the same mile again and again.

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Iron Butt 4 NF

Jan 17, 2017, Posted in Awareness, Community, Fundraiser, NF Hero, NF1

By Greg Davis

Iron Butt 4 NF, an odd name for a fundraising event wouldn't you say? If you've ever ridden a motorcycle for hundreds of miles, you can relate to the title.

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