My Kind of Beautiful

Oct 13, 2017, Posted in Awareness, NF Hero, NF1

By Angela Velasquez

I have an atypical face; my face is not symmetrical. When I am out in public, strangers tend to look at me with a puzzled gaze. They stare because I have a facial disfigurement due to neurofibromatosis. My right eye, which is a prosthetic, protrudes out and overall the right side of my face is slightly lower than that of my left. So, yes, my face is atypical which causes for a lot of wondering eyes.


CTF Now Accepts Donations Via Text Message

Sep 26, 2017, Posted in Awareness, Fundraiser, Latest News

The Children's Tumor Foundation is pleased to share that we can now accept donations via text message. Important information is included below about making a donation thru your mobile device.  

NF News Fall 2017 is now online

Sep 6, 2017, Posted in Awareness, Community, Latest News, Newsletter

The new issue of NF News, the official newsletter of the Children's Tumor Foundation, is now available! In this issue you will find: 

- Hackathon for NF2
- NF Conference Research Updates
- Extraordinary Spirit: Baseball Star Ian Desmond Greets NF Heroes Across the Country
- Awareness Month Highlights
- Stories of NF
- New Parent Education Guidebook
- And so much more!


Q&A: NF Mom Kristy Stewart on the End NF Car Hitting the Road in Kentucky

Aug 22, 2017, Posted in Awareness, Community, NF Hero, NF1

On August 10, 2017, the 65th Annual NIBROC Parade in Corbin, Kentucky featured the debut of a very special car driven by Wallen’s Towing & Recovery, a local Corbin automotive company. The parade is part of a three day festival that includes activities for all age groups and interests.

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