Synodos Review Committee Leader Anna Barker Receives Highest Recognition from the American Association for Cancer Research

Apr 17, 2018, Posted in Collaborations, Synodos

Children’s Tumor Foundation Synodos Review Committee Leader Anna Barker, PhD, was presented a Special Recognition Award at the Annual Meeting of the American Association for Cancer Research (AACR). This award was presented to individuals whose work has made extraordinary contributions to accelerate the prevention and cure of all cancers through research, education, communication, and collaboration.

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Rare Disease Day at the NIH

Mar 2, 2018, Posted in Collaborations, Science, Synodos

By Salvatore La Rosa

On Feb 29, 2008, EURORDIS, a European rare disease organization, sponsored the first Rare Disease Day in Europe. Then the United States joined the first global observance the following year, along with 23 other countries. This year I was invited to participate at the Rare Disease Day at the National Institutes of Health (NIH), an event that aims to bring together “Patients and Researchers – Partners for Life,” as their slogan has always been.

CTF Partners with Digital Science to Promote Open Data

Jan 23, 2018, Posted in Collaborations, Latest News, Science

The Children’s Tumor Foundation’s commitment to collaboration, open data and transparency is reinforced with a partnership with global technology company Digital Science on a new platform for next-generation research and discovery called Dimensions. This groundbreaking research information database aims to transform scholarly search by linking publications, grants, policy, data, and metrics for the first time.  

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Pig Models and NF1: The New Research Frontier

Nov 15, 2017, Posted in Collaborations, NF1, Science, Synodos

In March, members of the CTF staff were treated to a talk by Synodos for NF1 Principal Investigator Jill Weimer, PhD, of the Sanford School of Medicine. Dr. Weimer discussed the swine model program currently underway, which we hope will lead to a more accurate screening of drugs to treat NF1. Click thru for a transcript of her talk.

Innovative Medicines Initiative Brings Together Research Leaders at Global Gathering

Nov 2, 2017, Posted in Collaborations, Latest News, Science

Neurofibromatosis (NF) knows no boundaries, and while the Children’s Tumor Foundation (CTF) is based in the United States, its work is global, funding and collaborating with the best researchers on the planet working on NF.  In that spirit, we highly applaud the efforts of the Innovative Medicines Initiative (IMI). The IMI, based in Brussels - Belgium, is a public private partnership between the European Union and the European Federation of Pharmaceutical Industries and Associations that facilitates research collaboration in order to advance the development of medical treatments.

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