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Soundtrack of Silence: Matt Hay’s NPR interview

Apr 18, 2017, Posted in Awareness, CTF in the News, NF Hero, NF2

Matt Hay spoke with KQED-FM's (Northern California Public Broadcasting) new storytelling podcast, Q'ed Up, about losing his hearing, falling in love with his wife, starting a family, and living with neurofibromatosis type 2. Matt is a member of the Children's Tumor Foundation Board of Directors. 

Soundtrack of Silence: Matt Hay’s NPR interview transcript pt.2

Apr 18, 2017, Posted in Awareness, CTF in the News, NF Hero, NF2

Matt Hay spoke with KQED-FM's (Northern California Public Broadcasting) new storytelling podcast, Q'ed Up, about losing his hearing, falling in love with his wife, starting a family, and living with neurofibromatosis type 2. Matt is a member of the Children's Tumor Foundation Board of Directors. This part of the transcript picks up in the middle of the interview.

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NF Hero in the News: Tulsa World profiles Jerry Willman

The start of the month of February means one thing… Cupid’s Undie Run events taking place across the country! As participants continue shedding articles of clothing and raising money to support NF research, Tulsa World spoke with Jerry Willman about finding out he had neurofibromatosis, what it’s like living with NF and why he keeps running the same mile again and again.

Orlando NF Walk Volunteer Presented with Sonny’s Random Acts of BBQ Award

Aug 23, 2016, Posted in CTF in the News, Community, Fundraiser, NF Walk

Sonny's BBQ joined us at the Orlando NF Walk this year to recognize an amazing volunteer, Farida Timal, with the Random Acts of BBQ award! This award recognizes people in the community who spark the spirit of BBQ and who give selflessly of their time and talent to others. 

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