Executive Leadership

Research & Medical Programs

Marketing & Communications

Development

Major Gifts & Major Events

Finance & Administration

CTF DNA: Our Core Values

At the Children's Tumor Foundation, we live and breathe our core values. They are our DNA, guiding our behavior and actions as we work with each other, our partners, and the NF community.

   

Never Forget What and Who We Work For
We passionately pursue and take pride in our mission to “Drive Research, Expand Knowledge, and Advance Care for the NF Community”. This passion and pride are our strength. Those living with NF and their families are our inspiration and help guide everything we do. We seek to always stay aware of and be empathetic to their many challenges. Most importantly, we always remember we do what we do for them.

   

Our Bar is Set High
We work hard.  We work smart.  We have a bias for action.  The product of our work is a result of high intention, sincere effort and skillful execution. It is only through raising expectations and striving for the highest quality work product that we can reach our full potential and achieve our mission.  Each of us is empowered to take ownership to get things done and make a difference.  We approach all challenges and opportunities with a pro-active and positive attitude.  

   

There are No Traffic Jams Along the Extra Mile
We are obsessed with maintaining a culture of great service.  We continually seek to understand the needs of all of our partners from the NF community, academia, the business world, and government.   We aim to surpass their expectations and amaze in every interaction. We respect, care about and advocate for each of our constituents and seek and listen to their feedback recognizing that their perception is our reality.  Service is not a department – it is an attitude and everybody’s job.  And we adhere to a “Yes Before No” service mindset and reluctantly say no only after exhausting all possibilities of yes.

   

In Dreams Begin Responsibilities
We work in pursuit of such an important mission and understand that many people are counting on us.  We accept responsibility for our actions, hold ourselves accountable for our results, and take ownership of our mistakes. Each of us understands how our individual job responsibilities, actions and behavior contribute to our overall collective success. When things go wrong, we make them right without pointing a finger or blaming others. We operate on a foundation of integrity and trust with each other and our constituents, and we own and live up to the commitments we make.  

   

Smarter, Better, Faster
We drive and embrace innovation and change.  From how we engage with patients and donors to how we change the game to accelerate research and development, we are constantly looking for ways that we can take the traditional model and make it better. The status quo is our nemesis. Innovation requires creativity, a broad understanding of our systems and teams, and a commitment to fostering a learning environment.  We look ahead to anticipate change, strive to think outside the box, and have confidence in knowing that just because we do things a certain way now doesn’t mean we can’t find a better way. 

   

More We and Less Me
We are a united and collaborative team. We are supportive of each other’s efforts, loyal to one another and care for and respect each other both personally and professionally. Teamwork comes easy to us because of our passion and dedication to do the absolute best we can to fight our one common enemy.  We view our volunteers, donors, researchers, and especially our patients and their families as important team members.  “Alone we can do so little, together we can do so much ….”

   

Come On Get Happy 
We know achieving our mission requires a very serious focus and commitment.  Still, we don’t take ourselves overly seriously.  We have fun, smile and laugh as much as possible, and celebrate our successes.  We don’t believe this takes away from productivity—we believe it increases it.  When you enjoy the people you work with and the environment you work in, it’s much easier to focus your passion toward achieving your goals. 

Employment Opportunities

Our organization is committed to equal employment opportunity. We will not discriminate against employees or applicants for employment on any legally recognized basis including, but not limited to: veteran status, uniform service member status, race, color, religion, sex, national origin, age, physical or mental disability, genetic information or any other protected class under federal, state, or local law.

Our organization is also committed to providing equal employment opportunities to qualified individuals with disabilities. This may include providing reasonable accommodation where appropriate in order for an otherwise qualified individual to perform the essential functions of the job.

Regional Development Manager (New England)

The Children’s Tumor Foundation (CTF) is seeking a full-time Regional Development Manager to help increase our fundraising and awareness efforts in the New England area as we fight to end Neurofibromatosis (NF). Join one of the foremost disease research foundations dedicated to improving the health and well-being of individuals and families affected by NF. CTF serves the NF community through cutting-edge research, expanding knowledge, and advancing care for the NF community.

CTF is the largest private donor of NF research, and conducts its own as well as fosters advancements through active partnerships with patients, scientists, research institutions and industry. We have a vibrant participant and donor community, and an ambitious research agenda, setting us apart from other disease research foundations. 

CTF’s Regional Development team encompasses all of the Foundation’s programs and serves as a liaison between the community, the Research team, and fundraising.  Through their grass-roots efforts, Regional Development serves as the face of CTF to NF families, constituents, and the greater community, and raises about $5 Million annually for NF research.  They are also the first point of contact for newly diagnosed patients, and are a source of information, resources and referrals (internal and external) to NF families. 

About the Position

In this role, you will drive regional fundraising activities in the New England region while developing positive, lasting relationships between the NF community and CTF.  Aside from the primary fundraising and events role, your efforts will also be aimed at growing CTF’s presence in the community and local NF clinics, as well as connecting individuals to the myriad of programs and resources within the Foundation.  We’re looking for a candidate who has a passion for fundraising and events, and who is energized by people and their stories. 

Requirements:

  • Bachelor’s degree;
  • At least 2 years of special event and fundraising experience, with a track record of successfully reaching fundraising targets.
  • A clear communicator (verbal and written);
  • We need people who have the desire and ability to thrive in a fast-paced environment. You can manage multiple projects simultaneously under tight deadlines;
  • The ability to build long-lasting professional relationships with a variety of constituents and personalities;
  • You have been successful holding yourself and others accountable for measurable high-quality, timely, and cost effective results;
  • A work style that is flexible, self-motivated, respectful, collaborative, and nimble;
  • Comfortable working independently as well as collaborating with other team members in a project-based manner;
  • Previous experience thriving in a remote position;
  • Working knowledge of Microsoft Office Suite, Google and Salesforce;
  • A passion for and a belief in CTF’s mission and Core Values.

Responsibilities:

  • Responsible for building and leading a portfolio of NF Walk and Endurance fundraising events within the New England region (Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island and Vermont);
  • Actively recruit volunteers to fulfill NF Walk and Endurance event opportunities and creatively develop, engage and support volunteers to encourage their participation and to ensure event leadership succession;
  • Provide fundraising expertise and resources to volunteers to help them develop, organize and budget their own 3rd party fundraising events;
  • Establish new fundraising events within the region and cultivate states with little or no CTF or NF presence;
  • Create and lead new initiatives/tasks for the Regional Development team;
  • Ensure that the Gift Processing and Development teams have the most up-to-date and relevant information on all donors and local constituents;
  • Serve as the face of CTF within the region by building and maintaining lasting relationships with local volunteers, doctors, clinics, newly diagnosed patients, and connecting NF families with the Foundation;
  • Collaborate with the Communications team to increase public awareness of NF within the region;
  • Ensure that regional leadership and local constituents are provided with updates on CTF’s activities and events through phone calls, emails, social media and website updates.

Work Environment

  • You will be a full-time team member, but will work remotely within the greater Boston area.
  • You will travel nationally up to 30% of the time, including some weekends and evenings.

All candidates must be legally authorized to work in the USA.  We are an equal opportunity employer and value diversity at our company. We do not discriminate on the basis of race, religion, color, national origin, gender, sexual orientation, age, marital status, veteran status, or disability status.

Annette_Bakker

Annette Bakker, PhD

President and Chief Scientific Officer

Annette Bakker, the Children's Tumor Foundation's President and Chief Scientific Officer, holds a PhD in cell biology from the University of Antwerp. Her past experience includes serving as Oncology Group Leader at Janssen Pharmaceutica, and postdoctoral fellowships at Yale University and La Salpetriere, Paris.

Before joining the Children’s Tumor Foundation, Dr. Bakker served as head of the Oncology R&D department for a biotech company in Siena, Tuscany. While there, she designed and created a neuro-oncology department from the ground up, and managed large oncology research initiatives both nationally (Italian networks) and internationally (European and Asian networks).

Dr. Bakker's research has been internationally recognized by more than 30 peer-reviewed papers, patents, and awards, and she has extensive experience liaising and negotiating with biotechnology and pharmaceutical companies.

In her role at the Children's Tumor Foundation, Annette and her team will continue to build a strong NF community, design and execute innovative business models to accelerate the path from basic discovery to clinical benefit for NF patients, develop partnerships with pharmaceutical and biotech industries, and attract new scientists and funders to the NF field.

Annette is originally from Belgium, and speaks four languages (English, French, Dutch, and Italian). She lives happily in Westchester, NY with her family.

P1040749

Reid Horovitz

COO and CFO
simon_vukelj

Simon Vukelj

VP, Marketing and Communications
Salvo_LaRosa

Salvo La Rosa

VP, Research and Development
melissa_sosa-longo

Melissa Sosa-Longo

Vice President, Major Gifts
PatricePancza

Patrice Pancza

Research Program Director
catherine_blessing

Catherine Blessing

Director of Human Resources
Annette_Bakker

Annette Bakker, PhD

President and Chief Scientific Officer

Annette Bakker, the Children's Tumor Foundation's President and Chief Scientific Officer, holds a PhD in cell biology from the University of Antwerp. Her past experience includes serving as Oncology Group Leader at Janssen Pharmaceutica, and postdoctoral fellowships at Yale University and La Salpetriere, Paris.

Before joining the Children’s Tumor Foundation, Dr. Bakker served as head of the Oncology R&D department for a biotech company in Siena, Tuscany. While there, she designed and created a neuro-oncology department from the ground up, and managed large oncology research initiatives both nationally (Italian networks) and internationally (European and Asian networks).

Dr. Bakker's research has been internationally recognized by more than 30 peer-reviewed papers, patents, and awards, and she has extensive experience liaising and negotiating with biotechnology and pharmaceutical companies.

In her role at the Children's Tumor Foundation, Annette and her team will continue to build a strong NF community, design and execute innovative business models to accelerate the path from basic discovery to clinical benefit for NF patients, develop partnerships with pharmaceutical and biotech industries, and attract new scientists and funders to the NF field.

Annette is originally from Belgium, and speaks four languages (English, French, Dutch, and Italian). She lives happily in Westchester, NY with her family.

Salvo_LaRosa

Salvo La Rosa

VP, Research and Development
maria_carela

Maria Carela

Grant Manager
vidya_dhote

Vidya Browder

Basic Science Manager
P1040754

Kate Kelts

Patient Support Coordinator (Part-time)
PamKnight

Pamela Knight

Director, Clinical Program
PatricePancza

Patrice Pancza

Research Program Director
Heather_Radtke

Heather Radtke

Clinic & Symposium Coordinator (Part-time)
traceann_rose

Traceann Rose

Director, Patient Engagement
sarah_rosenberg

Sarah Rosenberg

Senior Executive Assistant to the President
Manager of Special Projects and Board Affairs
simon_vukelj

Simon Vukelj

VP, Marketing and Communications
rebecca_harris

Rebecca Harris

Public Relations Manager
alissa_marks

Alissa Marks

Marketing Senior Manager (Part-time)
Susanne_Preinfalk

Susanne Preinfalk

Designer
P1040758

Vanessa Younger

Communications Senior Manager
P1040822

Allison Cote

Regional Development Manager
emily_c

Emily Crabtree

Director, Development Operations
angela_dumadag

Angela Dumadag

Regional Development Manager
Angela_Earle

Angela Earle

Director, Development Innovations and Kids Program
P1040755

Channell Hogan

Regional Development Manager
lolita_jerido

Lolita Jerido

Regional Development Manager
Kelly_Mills

Kelly Mills

Regional Development Manager
julie_pantiliano

Julie Pantoliano

Regional Development Manager
kristinie_pourier

Kristine Poirier

Senior Director, Development
P1040746

Kim Robinson

Regional Development Manager
melissa_sosa-longo

Melissa Sosa-Longo

Vice President, Major Gifts
Katie_2

Katie Bloom

Director, Major Gifts
rebecca_deorneleas

Rebecca De Ornelas

National Manager, Special Events
mary_vetting

Mary Vetting

Stewardship Manager
P1040749

Reid Horovitz

COO and CFO
catherine_blessing

Catherine Blessing

Director of Human Resources
monique_boucher

Monique Boucher

Gift Processing Manager
sarah_bourne

Sarah Bourne

Director, Finance
albert_diaz

Albert Diaz

Director of IT and Salesforce Administration
maggie_flacimico

Maggie Flaccamio

Fulfillment Coordinator
keena_hutchinson

Keena Hutchinson

Gift Processing Coordinator
morgan_kellog

Morgan Kellogg

Gift Processing Assistant (Part-time)
latisha_maxwell

Latisha Maxwell

Gift Processing Coordinator
danielle_meyer

Danielle Meyer

Technical Support, National Programs
carey_milligan

Carey Milligan

Accountant
Rosa_Perez

Rosa A. Perez

Project Administrator
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David Riordan

Senior Director, Data & Strategy
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Connie Sorman

Senior Manager, Volunteer Engagement