Littlest Tumor Foundation NF Family Wellness Retreat

Jul 24, 2017, Posted in Community, Outside Opportunities

Every August the Littlest Tumor Foundation hosts the NF Family Wellness Retreat in Clintonville, WI. This year, the retreat will take place from August 11-14 at the Imago Dei Village and is free of charge. The mission at the retreat is to strengthen the family unit, build compassion, and address NF manifestations through practicing a healthy lifestyle.

Seeking grant applications for MPNST research at Boston Children’s Hospital

Jun 22, 2017, Posted in Collaborations, Outside Opportunities, Science

The NF Research Initiative (NFRI) at Boston Children’s Hospital has two open requests for applications:

NTAP Call for RFAs: Cutaneous Neurofibromas

Apr 20, 2017, Posted in Collaborations, NF1, Outside Opportunities, Science

Neurofibromatosis Therapeutic Acceleration Program (NTAP) is launching a new research program focused on understanding the pathogenesis of cutaneous neurofibromas. NTAP is a philanthropic research entity based at Johns Hopkins University dedicated to the discovery of therapeutics for the peripheral nerve tumors that afflict people with neurofibromatosis type 1 (NF1). Cutaneous neurofibromas represent a major unmet need for NF1 patients. This research program sets the blueprint for improving therapeutics for these tumors by encouraging research proposals that improve the Understanding of Cutaneous Neurofibromas

Recruiting for a research study aimed at helping adults with NF2

Mar 16, 2017, Posted in NF2, Outside Opportunities, Science

The Family Center for Neurofibromatosis at Massachusetts General Hospital is conducting a research study aimed at helping adults with NF2 who are deaf or have severe hearing loss manage stress associated with NF2

Call for Applications for the class of 2017 Francis S. Collins Scholars

Jan 9, 2017, Posted in NF1, Outside Opportunities, Science

The Neurofibromatosis Therapeutic Acceleration Program (NTAP) is now accepting applications for the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research. The Collins Scholars program brings together a community of exceptionally well-trained clinician scientists who will be leaders in the field of NF1 research.

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