Call for Applications for the class of 2017 Francis S. Collins Scholars

Jan 9, 2017, Posted in NF1, Outside Opportunities, Science

The Neurofibromatosis Therapeutic Acceleration Program (NTAP) is now accepting applications for the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research. The Collins Scholars program brings together a community of exceptionally well-trained clinician scientists who will be leaders in the field of NF1 research.

Recruiting for a research study aimed at helping adults with NF2

Mar 16, 2017, Posted in NF2, Outside Opportunities, Science

The Family Center for Neurofibromatosis at Massachusetts General Hospital is conducting a research study aimed at helping adults with NF2 who are deaf or have severe hearing loss manage stress associated with NF2


Survey on Social Media and NF

Oct 24, 2016, Posted in Outside Opportunities, Science

You are invited to participate in a study of the effects of social media and support groups on feelings of isolation and self-esteem that may arise in individuals with neurofibromatosis (NF). Participation involves completing an online questionnaire. The questionnaire also assesses the feelings that individuals in the NF community have towards the representation of the NF in social media.

Genome magazine announces essay contest for patients and families

Jun 1, 2016, Posted in Outside Opportunities

Genome magazine and the National Society of Genetic Counselors (NSGC) recently announced the inaugural Code Talker Award — an essay contest for patients and their families to honor a genetic counselor who has left a lasting impact on them. 

Fellowship in Computational Modeling of Neurofibromatosis / Schwannomatosis

Seattle, Washington Sage Bionetworks and the Children’s Tumor Foundation (CTF) are recruiting qualified candidates for a fully-funded 2-year postdoctoral training program. We are seeking individuals with a research or clinical background in neurofibromatosis (NF) or NF-related diseases, who are looking to broaden his/her skill-set by learning and applying computational approaches to cancer. Successful candidates will spend their time at Sage Bionetworks in Seattle, working side-by-side with data scientists, computational biologists, and clinicians.

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