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CTF collaborates with NASA to democratize data

The Children’s Tumor Foundation’s latest partnership is out of this world! CTF is euphoric to be part of the #YearofOpenScience, a collaboration spearheaded by the Center for Open Science, with support from NASA. Together with 15 additional organizations, these groups will convene for a series of working sessions to align collective action, culminating with a Year of Open Science conference in 2024 to showcase outputs, coalition-building, and ongoing work from these joint efforts. Click here to read the official press release from the Center for Open Science.

The Children’s Tumor Foundation is a firm believer in open science and data sharing. As a private funder in the disease space of neurofibromatosis and schwannomatosis, CTF launched the first ever NF Data Portal in 2014, and in 2018 spearheaded the NF Open Science Initiative (NF-OSI). CTF worked collaboratively with all the major NF private funders as well as federal funders (CDMRP, NIH) to centralize access to data for the NF research community in a public repository hosted by Sage Bionetworks. The NF Data Portal allows users to openly explore and share NF datasets, analysis tools, resources, and publications related to neurofibromatosis and schwannomatosis. Anyone can join the NF Open Science Initiative (NF-OSI) to contribute.

We believe that our standard policies for data sharing and open science, together with other initiatives like the Data Portal, the Drug Discovery Initiative Registered Report (DDIRR) grants, and the implementation of persistent identifiers (DOIs) for grants and data, will accelerate the advancement of our mission to finding a cure for all forms of neurofibromatosis, by democratizing access to data.