Synodos for Schwannomatosis: A Video Q&A

Synodos for Schwannomatosis, an international consortium of clinicians and scientists from multiple disciplines, was launched at a full team meeting in Toronto, Canada on May 1, 2017.  At the conclusion of this inaugural meeting, we met with the leaders of this exciting new consortium, who spoke candidly about the meeting, schwannomatosis research, and what is at stake for this important project.

Video: CTF President Annette Bakker at the NF Conference Welcome Dinner

Jun 19, 2017, Posted in Latest News, NF Conference, Video

Children's Tumor Foundation President and Chief Scientific Officer Annette Bakker, PhD, addressed the attendees at the annual NF Conference Welcome Dinner on Saturday, June 10, 2017 at the National Press Club in Washington, DC. Dr. Bakker spoke to the nearly 400 attendees about the importance of disease-focused research, the advantages of team science, and the development of an infrastructure intended to bring biotech and pharmaceutical companies to the NF table. She highlighted CTF's innovative research model, and its tremendous potential for further application to other rare disease, as well as cancer research. The NF Conference is the premier gathering of scientists and clinicians from around the world dedicated to advancing research and care for those living with NF.

Video: Keynote Speaker Greg Simon at the NF Conference Welcome Dinner

Jun 15, 2017, Posted in Latest News, NF Conference, Video

Greg Simon, Director, Biden Cancer Initiative, was the Keynote Speaker at the 2017 NF Conference Welcome Dinner on Saturday, June 10, 2017. The NF Conference is the premier gathering of scientists and clinicians from around the world dedicated to advancing research and care for those living with NF. Mr. Simon addressed the nearly 400 attendees on the topics of research collaboration and breaking down barriers to research progress. Introducing Mr Simon is Annette Bakker, PhD, Children's Tumor Foundation President and Chief Scientific Officer. Click thru to view his presentation.

Synodos for NF1 Team Gives Update

Oct 25, 2016, Posted in Collaborations, Latest News, NF1, Science, Synodos, Video

Last year, the Children's Tumor Foundation announced Synodos for NF1, a unique consortium bringing together a multidisciplinary team of scientists, clinicians, technicians, patients and other experts from world-class labs at academic and medical centers. These scientists have pledged to work together and share unpublished information, datasets, and results, thereby accelerating the drug development process.

Regarding This Week’s Episode of “Scream Queens”

Like the rest of the NF community, we are stunned after watching this week’s episode of “Scream Queens”, titled “Warts & All.” In addition to providing escape and entertainment, television shows have the capacity to teach and make the audience feel something. However, this show needlessly elicited pain and anger in a community seeking nothing more than kindness and acceptance.

Next Page