New Webinar Series: Ask the Expert

Jan 8, 2018, Posted in Latest News, NF1, NF2, Schwannomatosis, Science, Video

We at CTF understand that not everyone living with NF is able to be seen by an NF expert on a regular basis or attend NF Forums, symposiums, or conference. With that in mind we are excited to bring you this webinar series!

Choose the UN in Your Approach

Nov 20, 2017, Posted in Awareness, Latest News, Video

To End NF, we need an UN-attitude.

First Synodos Network Meeting Hosted by CTF

Earlier this month, more than 70 researchers, clinicians, patients, staff, and other experts gathered in Palm Beach, Florida for the first Synodos Network Meeting, hosted by the Children’s Tumor Foundation.

Synodos for Schwannomatosis: A Video Q&A

Synodos for Schwannomatosis, an international consortium of clinicians and scientists from multiple disciplines, was launched at a full team meeting in Toronto, Canada on May 1, 2017.  At the conclusion of this inaugural meeting, we met with the leaders of this exciting new consortium, who spoke candidly about the meeting, schwannomatosis research, and what is at stake for this important project.

Video: CTF President Annette Bakker at the NF Conference Welcome Dinner

Jun 19, 2017, Posted in Latest News, NF Conference, Video

Children's Tumor Foundation President and Chief Scientific Officer Annette Bakker, PhD, addressed the attendees at the annual NF Conference Welcome Dinner on Saturday, June 10, 2017 at the National Press Club in Washington, DC. Dr. Bakker spoke to the nearly 400 attendees about the importance of disease-focused research, the advantages of team science, and the development of an infrastructure intended to bring biotech and pharmaceutical companies to the NF table. She highlighted CTF's innovative research model, and its tremendous potential for further application to other rare disease, as well as cancer research. The NF Conference is the premier gathering of scientists and clinicians from around the world dedicated to advancing research and care for those living with NF.

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