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CTF NF2-SWN Documentary: Play It By Ear

By March 18, 2024May 11th, 2024NF2-SWN, Video

The Children’s Tumor Foundation is proud to present Play It By Ear, a short documentary film featuring the family of Nicholas Lindeback, who lives with NF2-related schwannomatosis, or NF2-SWN.

Nick was diagnosed with neurofibromatosis type 2 (now referred to as NF2-related schwannomatosis), a rare genetic condition that causes tumors to grow on nerves. In this short documentary film, Nick and his family invite us into their Scottsdale, Arizona home, where hearing loss, pain, and ongoing surgeries were not what this music-loving family ever expected. For Nick and his family, when the music stops, you have to try to remember the beat and keep going.

The documentary is now available to view on the CTF YouTube channel, and below.

About the Filmmakers
Directors Lorena Luciano and Filippo Piscopo are a husband and wife team and founders of Film2Productions. Together, Filippo and Lorena have produced numerous documentary films across the US and around the world, in addition to docuseries for television outlets that include Netflix, HBO, and Hulu. Their work together has been recognized with numerous prestigious awards at international film festivals, the MacArthur Foundation, and the Sundance Institute. Among their many credits is It Will Be Chaos, an Emmy award-winning documentary produced for HBO Documentary Films.

This documentary film is thanks in part to a gift from CTF donors Elaine and Edward Altman.

About the Children’s Tumor Foundation
Founded in 1978, the Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation, the leading force in the fight to end NF, and a model for other innovative research endeavors.