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Events &

Have fun, raise NF awareness, and join a community where every
member makes a meaningful impact.

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Shine a Light NF Walk

Shine a Light NF Walk is the signature fundraising event of the Children’s Tumor Foundation. Our goal is to spread awareness of neurofibromatosis and schwannomatosis – genetic conditions that collectively affect more than 4 million people worldwide – and raise critical funds to advance research and treatments. Held in communities across the US, Shine a Light NF Walks are family-friendly events where NF patients, families, and friends can connect with others on a similar journey.

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NF Endurance

The Children’s Tumor Foundation NF Endurance Team gives participants the opportunity to run, bike, or swim in endurance events across the country. Get a guaranteed spot in premier and often sold-out races, participate in running or cycling events around the world, take on a new challenge with an obstacle course or triathlon…you can even “Choose Your Own Challenge” and pick any adventure you’d like to tackle to benefit CTF.

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Cupid's Undie Run

Cupid’s Undie Run is a mile(ish) fun run in which brightly adorned, underwear-clad team members run outdoors (in February) for NF awareness. Cupid’s Undie Run is not a race – there are no timing chips or race bibs, and there are no winners (except NF research funded through our efforts)! Participants enjoy mingling and music before the run and an epic dance party to celebrate after.

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A large group raises hands in excitement at the NF Summit.

NF Summit

The Children’s Tumor Foundation’s annual patient and family conference, the NF Summit, brings together NF patients and families, volunteers, event organizers, researchers, clinicians, advocates, and supporters.

The 2024 NF Summit will be April 11-13, 2024 at the Hyatt Regency San Antonio Riverwalk in San Antonio, Texas.

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Dancing With Our Stars

Dancing With Our Stars in Little Rock and Northwest Arkansas are feature local community members and are annual entertaining galas in their communities.

Children's tumor foundation poker tournament.

Online Poker Tournament

Celebrity card sharks, NF families, and supporters across the country join together to raise funds for NF research – all in pursuit of the grand prize, a seat at the tables of the World Series of Poker.

NF2-SWN Accelerator

Raise awareness and share information about CTF’s commitment to expanding the drug pipeline and accelerating treatments for NF2-related schwannomatosis.

All Events

Discover local Children’s Tumor Foundation events in your area.


April 11, 2024

2024 Clinics Meeting - San Antonio

April 13, 2024

Johns Hopkins All Children’s Hospital 8th Annual NF1 Education Symposium

April 27, 2024

2024 NFE TD Five Boro Bike Tour

May 5, 2024

Carolinas NF Awareness Day with the Charlotte Knights

May 17, 2024

Henry Ford Health and Nick Gilbert NF Research Institute Inaugural Patient Conference – HYBRID EVENT

May 18, 2024

CTF Funds NF2-SWN Research

May 22, 2024

2024 NFE Rock 'n' Roll San Diego

June 1, 2024

2024 Shine a Light Walk Cincinnati

June 1, 2024

2024 Shine a Light Walk Southern California

August 17, 2024

2024 Shine a Light Walk Iowa

August 17, 2024

Surgical - Facial Reanimation

August 22, 2024

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Other ways to support

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Volunteers are a driving force behind the Foundation.

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Your voice has the power to impact public policy and promote action to find a cure for NF.

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Make a Donation

With your help, we can continue to fund critical research and one day find a cure.

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Raise Awareness

Help us make sure the world knows about NF and sees the people who live with it.