2024 CHLA NF1 Family Symposium

In conjunction with the Children’s Hospital of Los Angeles and NF California, the Children’s Tumor Foundation presents the 2024 NF1 Family Symposium.

There is no fee to attend this event, but registration is required by September 8.
Register here
Lunch will be provided.
View the event flier
Contact email: Katie Wanninger, RN

AGENDA
(Doors open at 8:00am)
*8:30-9:00am |Check-In and Welcome
Dr. Tena Rosser

*9:00-9:30am | NF1 Clinical Basics
Dr. Tena Rosser

*9:30-10:20am | Moving the Needle in Cutaneous Neurofibroma Care: Updates on Cutaneous NF research
Dr. Carlos Romo, Johns Hopkins University School of Medicine

*10:20-10:30am | Break

*10:30-11:00am | Neurofibromatosis Type 1:  Sometimes Hereditary, Always Genetic
Dr. Linda Randolph, CHLA, Division of Medical Genetics

*11:00-12:00pm | Learning Disabilities, ADHD, and Executive Functioning in NF1
Dr. Jennifer Janusz

Children’s Hospital Colorado

*12:00-12:30pm | Lunch Break

*12:30-1:15pm | Plastic Surgical Issues in NF1
Dr. Andre Panossian, Plastic Surgeon

*1:15-1:45pm | Optic Pathway Gliomas in NF1
Dr. Nathan Robison, CHLA, Division of Oncology

*1:45-2:00pm | NF Clinic Coordinator Update
Katie Wanninger, RN, CHLA, Division of Neurology

*2:00-2:15pm | Break

*2:15-3:00pm NF California Support Group
Katie Sperring, NF California

*3:00pm | Wrap Up
Dr. Tena Rosser