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Medical Advisory Committee

The Children’s Tumor Foundation Medical Advisory Committee (MAC) was established to guide efforts to support and fund the most innovative and promising research to cures for all forms of neurofibromatosis. It is comprised of physicians and scientists knowledgeable and active in the field of NF, inclusive of leading clinicians, leading research scientists, and directors of other NF research funding organizations.

Main Functions of the MAC

Advice to the CTF CSO on strategy

Information and guidance on scientific and clinical research

Perspective on Foundation programs

Review of the Strategic Plan

Advice on funding decisions

Guidance and expert opinion

Current MAC Projects

Ensure maximum alignment between CTF and other NF initiatives

Provide expert feedback on scientific advancements and their potential application to NF

Help in the planning of the annual NF Conference

Ongoing final review of the Young Investigator Award applications, Drug Discovery Initiative Award applications, Contract Award applications and special awards, and Consortia awards

Development and approval of CTF educational materials

Chairs
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D. Wade Clapp, MD, Chair

Indiana University

Council Members
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Jaishri Blakeley, MD

Johns Hopkins University

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Michael Fisher, MD

Children’s Hospital of Philadelphia, Chair of DOD NF Clinical Trial Consortium

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Nader Fotouhi, PhD

Chief Scientific Officer of the TB Alliance

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Aerang Kim, MD, PhD

Children’s National Hospital

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YooRi Kim, MS

Gilbert Family Foundation

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Bruce Korf, MD, PhD

University of Alabama at Birmingham

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Lu Le, MD, PhD

University of Texas Southwestern

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Eric Legius, MD, PhD

University of Leuven, Belgium

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Andrea McClatchey, PhD

Massachusetts General Hospital

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David T. Miller, MD, PhD

Boston Children’s Hospital, Scientific Director of the Neurofibromatosis Research Initiative (NFRI)

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Helen Morrison, PhD

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Scott Plotkin, MD, PhD

Massachusetts General Hospital

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Edu Serra, PhD

Germans Trias i Pujol Research Institute

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Georg C Terstappen, PhD

Executive Vice President, Drug Discovery, Cambrian Biopharma

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David Viskochil, MD, PhD

University of Utah

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Brigitte Widemann, MD

National Cancer Institute

Board Liasons
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Rob Brainin

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Tracy Galloway

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Gabriel Groisman

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Richard Horvitz

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Richard Soll

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Edward M. Stern, ESQ

CTF Staff
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Annette Bakker, PhD

President

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Marco Nievo, PhD

Chief Scientific Officer, CTF Europe