The NF Parent Guidebook is a home-based, 160-page resource designed to provide support and education to you and your family. It will guide you through your journey with NF and associated learning, behavioral, or social challenges. The NF Parent Guidebook is a place to find ideas, strategies, and suggestions that will help you understand and meet the needs of your family and child.

Click HERE to download a flyer to share with anyone who might be interested in the NF Parent Guidebook.

The NF Parent Gudebook is now available in French. Download the French language version, Guide sur la NF à l’intention des parents, HERE.

Movie & Sparx

Moxie and Sparx will be your guides as your family completes the NF Parent Guidebook. They will also lead you through some fun activities for you to engage in with your child.


The NF Parent Guidebook is the product of a multi-year CTF research grant given to Maria Acosta, MD, of the Children’s National Health System. Other contributors to the Guidebook include Beth Kaplanek, RN, BSN, and Karin Walsh, PsyD.