Skip to main content

We’re going the extra mile to End NF.

Find an EventFind a Participant

NF Endurance

The Children’s Tumor Foundation NF Endurance Team gives participants the opportunity to run, bike, or swim in endurance events across the country. Get a guaranteed spot in premier and often sold-out races, participate in running or cycling events around the world, take on a new challenge with an obstacle course or triathlon…you can even “Choose Your Own Challenge” and pick any adventure you’d like to tackle to benefit CTF. For more information, contact us at

NF affects 1 in every 2,000 births

NF refers to genetic disorders that cause tumors to grow on nerves throughout the body. NF includes all forms of neurofibromatosis and schwannomatosis and affects about 4 million people worldwide. Anyone can be born with NF, and it affects everyone differently. There is no cure yet.


FDA-approved Drug for NF, and more on the horizon

Koselugo (selumetinib) is the first FDA-approved drug for NF. CTF-funded research paved the way to this drug approval, and we are working for more approved drugs for all types of NF!


the number of NF Clinical Trials in the past 10 years

There are currently 67 active clinical trials for NF – three times the number of trials than just ten years ago!


years of funding NF research

The Children’s Tumor Foundation was founded 45 years ago as the first grassroots organization to support patients with all types of NF.


have joined the NF Registry

The NF Registry is a secure website where people with NF can take an active role in the search for better treatments. Participating is easy and makes a difference!


patients each year visit the NF Clinic Network

The NF Clinic Network (NFCN) is the first nationwide network dedicated to improving clinical care and establishing best practices for treating individuals with NF.

Find an event

Interested in volunteering for an event near you?

No events in your area?

Choose your own challenge

Sign Up

Find a Participant/Team

Raised: $14,134
Raised: $13,071
Raised: $12,550
Raised: $4,282
Raised: $3,658
Raised: $3,187
Raised: $3,036
Raised: $2,811
Raised: $2,763
Raised: $22,305
Raised: $13,221
Raised: $4,435
Raised: $2,389
Raised: $1,991
Raised: $1,364
Raised: $1,282
Raised: $1,058
Raised: $773
Raised: $718

Why you should get involved

A young boy holding a sign that says make nf visible.

Make an Impact

Fundraising efforts by our participants help us take steps toward a cure

A group of people posing for a photo.

Find Community

Connect with other athletes in your area and around the world

A woman standing in front of a door with a sign that says i know a fighter.

NF Heroes

Get to know NF Heroes - individuals living with NF - their stories will push you across the finish line

A man and a boy walking down a track wearing t - shirts that say end nff.

Earn Incentives

Earn a variety of fun prizes when you reach fundraising milestones

Featured Stories / Testimonials

Woman smiling with her hand on her hip, standing in front of a digitally added autumnal forest backdrop.

Stories of NF: Blanchesca G

My mom has told me how I got NF and it was when I was…
Two people smiling for a selfie with a boat and overcast sky in the background.

Chiasm: A Published Essay by Heather Osterman-Davis

Heather Osterman-Davis is a published writer and an NF Mom. Her work has appeared in…
A smiling child in a green hoodie sitting on a dock by the water with autumn foliage in the background.

Stories of NF: Charlie H

Charlie was diagnosed at nine months old through genetic testing. At five weeks old he…

Other ways to support

People talking in front of a podium


Volunteers are a driving force behind the Foundation.

Group of people advocating for NF


Your voice has the power to impact public policy and promote action to find a cure for NF.

A young girl wearing a blue t - shirt with the words end nf on it.

Make a Donation

With your help, we can continue to fund critical research and one day find a cure.

Woman Running a race with CTF Shirt

Raise Awareness

Help us make sure the world knows about NF and sees the people who live with it.

Connect with us