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We’re going the extra mile to End NF.

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NF Endurance

The Children’s Tumor Foundation NF Endurance Team gives participants the opportunity to run, bike, or swim in endurance events across the country. Get a guaranteed spot in premier and often sold-out races, participate in running or cycling events around the world, take on a new challenge with an obstacle course or triathlon…you can even “Choose Your Own Challenge” and pick any adventure you’d like to tackle to benefit CTF. For more information, contact us at nfendurance@ctf.org

NF affects 1 in every 2,000 births

NF refers to genetic disorders that cause tumors to grow on nerves throughout the body. NF includes all forms of neurofibromatosis and schwannomatosis and affects about 4 million people worldwide. Anyone can be born with NF, and it affects everyone differently. There is no cure yet.

1

FDA-approved Drug for NF, and more on the horizon

Koselugo (selumetinib) is the first FDA-approved drug for NF. CTF-funded research paved the way to this drug approval, and we are working for more approved drugs for all types of NF!

3X

the number of NF Clinical Trials in the past 10 years

There are currently 67 active clinical trials for NF – three times the number of trials than just ten years ago!

45

years of funding NF research

The Children’s Tumor Foundation was founded 45 years ago as the first grassroots organization to support patients with all types of NF.

11,000

have joined the NF Registry

The NF Registry is a secure website where people with NF can take an active role in the search for better treatments. Participating is easy and makes a difference!

20,000

patients each year visit the NF Clinic Network

The NF Clinic Network (NFCN) is the first nationwide network dedicated to improving clinical care and establishing best practices for treating individuals with NF.

Find an event

Interested in volunteering for an event near you?

No events in your area?

Choose your own challenge

Sign Up

Find a Participant/Team

Raised: $14,134
283%
Raised: $14,106
71%
Raised: $12,550
717%
Raised: $4,282
57%
Raised: $3,658
18%
Raised: $3,187
91%
Raised: $3,036
87%
Raised: $2,811
104%
Raised: $2,763
79%
Raised: $23,591
118%
Raised: $14,256
71%
Raised: $4,435
89%
Raised: $2,389
15%
Raised: $2,039
4%
Raised: $1,991
40%
Raised: $1,779
36%
Raised: $1,282
171%
Raised: $1,058
42%
Raised: $773
15%

Why you should get involved

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Make an Impact

Fundraising efforts by our participants help us take steps toward a cure

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Find Community

Connect with other athletes in your area and around the world

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NF Heroes

Get to know NF Heroes - individuals living with NF - their stories will push you across the finish line

A man and a boy walking down a track wearing t - shirts that say end nff.

Earn Incentives

Earn a variety of fun prizes when you reach fundraising milestones

Featured Stories / Testimonials

A teenage boy stands with arms outstretched in front of a colorful mural of wings and a sun, wearing a casual t-shirt and shorts.
NF1

Stories of NF: Owen M

Owen was diagnosed with NF 1 before the age of one. Shortly after, Owen started…
Woman smiling with her hand on her hip, standing in front of a digitally added autumnal forest backdrop.
NF1

Stories of NF: Blanchesca G

My mom has told me how I got NF and it was when I was…
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Awareness

Chiasm: A Published Essay by Heather Osterman-Davis

Heather Osterman-Davis is a published writer and an NF Mom. Her work has appeared in…

Other ways to support

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Volunteer

Volunteers are a driving force behind the Foundation.

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Advocate

Your voice has the power to impact public policy and promote action to find a cure for NF.

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Make a Donation

With your help, we can continue to fund critical research and one day find a cure.

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Raise Awareness

Help us make sure the world knows about NF and sees the people who live with it.

Connect with us