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Take Flight with the Children's Tumor Foundation

Children and adults need to be free of the pain and fear that come from living with NF, including all types of neurofibromatosis and schwannomatosis.

Meet Lindsey and Bryson

My name is Lindsey and I have lived with NF my entire life. My son was born with NF, too.

NF is a group of genetic conditions that occur in 1 of every 2,000 births. It causes tumors to grow on nerves throughout the body. There is currently no cure for NF.

I was in and out of doctors’ offices and operating rooms for most of my young life. I knew it was a different life, but I never let it put a damper on my positive outlook.

Over the last year, navigating motherhood as a first-time mom with a medically complex baby has not always been easy. I remind myself that Bryson is living a different life, just like me.

The Children’s Tumor Foundation is working to raise funds for research into treatments, and raising awareness about NF and how many people it affects. My goal is to spread awareness in hopes of finding a cure.

About NF

NF refers to a group of genetic conditions that collectively affect 1 in every 2,000 births. These conditions cause tumors to grow on nerves throughout the body and can lead to deafness, blindness, disfigurement, bone abnormalities, learning disabilities, disabling pain, and cancer. NF includes neurofibromatosis type 1 (NF1) and all forms of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2. 

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About the Children's Tumor Foundation

Founded in 1978, the Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation and a leading force in the fight to end NF.

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