
What is NF? NF refers to a group of genetic conditions that cause tumors to grow on nerves throughout the body. NF includes neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN), formerly known as neurofibromatosis type 2, or NF2. NF affects 4 million people worldwide. Anyone can be born with NF, and it impacts everyone differently.

Everything the Children’s Tumor Foundation does is to bring treatments to patients as we work toward a cure.
Need Help Finding an NF Specialist?
Getting the right care starts with the right doctor. Use our Find a Doctor tool to locate NF specialists near you—so you can take the next step with confidence.

Looking for More Information about NF?
We’re here to help. Visit our Resource Center for trusted information, guides, and tools to support you at every step of your NF journey.

Newly Diagnosed or Waiting for a Diagnosis?
Getting an NF diagnosis, or waiting for a diagnosis, can be overwhelming. The most important thing to remember is that you are not alone. We suggest starting your journey with these resources.

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