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The latest news, stories, and updates from the Children's Tumor Foundation.

 

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NF1Story of NF

Story of NF: Michael M.

Michael was diagnosed with neurofibromatosis type 1 (NF1) at only two months old. NF has…
Cover of the 2024 Impact Report by Children's Tumor Foundation, featuring a blue molecular structure with the text "Accelerating Discovery, Transforming Lives.
AwarenessTop StoryTop Story EU

Children’s Tumor Foundation 2024 Impact Report

The Children’s Tumor Foundation (CTF) has released its latest impact report, detailing significant progress in…
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FeaturedFeatured EUScience & Research

CTF CEO Annette Bakker Moderates Panel at World Orphan Drug Congress 2025

Children’s Tumor Foundation CEO Annette Bakker to speak on unleashing the life-changing potential of shelved…
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CTF in the NewsFeaturedFeatured EUScience & Research

How a Once-Abandoned Drug Found New Life – and Changed the Future for NF Patients

The drug mirdametinib was once shelved by Pfizer. Today, it’s Gomekli - an FDA-approved treatment…
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NF1Story of NF

Story of NF: Lainey O.

This Story of NF was submitted by Lainey's mother, Whitney. It all happened very suddenly…
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FeaturedScience & Research

CTF-Hosted Lab Tour: Cincinnati Children’s Hospital

The Children’s Tumor Foundation was proud to host a group of patients and families affected…
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NF1Story of NF

Story of NF: Catherine K.

When I was born, something wasn’t right with my eyes. One was basically closed shut;…
A woman speaks at a podium during the Global NF Conference, with text highlighting "Patient Day at the Global NF Conference" on a blue background.
GlobalNF Conference

Patient Day at the Global NF Conference

As part of the 2024 Global NF Conference, the Children’s Tumor Foundation hosted its second…
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Awards & GrantsFeaturedFeatured EUNF1Science & Research

Young Investigator: Q&A with Sarah Morrow about NF1 and MPNST

The Young Investigator Award (YIA) provides two-year salary support to early-career NF researchers to help…
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AdvocacyFeaturedFeatured EU

Children’s Tumor Foundation Chair Pens Message Urging Restoration of NF Research Funding

In an op-ed published in RealClearHealth, Gabriel Groisman, Chair of the Children's Tumor Foundation, calls…
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AdvocacyFeatured

Standing Strong for NF Research and How You Can Help

March 26, 2025 Update:  Dear Friends, I’m reaching out about the federal NF research funding…
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NF2-SWNStory of NF

Story of NF: Anisha R.

I was diagnosed at the age of 26 in 2022. I experienced extraordinary NF2-SWN effects…