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The latest news, stories, and updates from the Children's Tumor Foundation.

 

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NF1Story of NF

Story of NF: Ivan R.

This story was submitted by Ivan's mother, Francis. Ivan was only about 3-4 months old…
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Awards & GrantsFeaturedFeatured EU

The Friedrich von Recklinghausen Award: Neurofibromatosis Tradition and Progress

The Children’s Tumor Foundation’s Friedrich von Recklinghausen Award is given to individuals in the professional…
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FeaturedFeatured EUPress Release

The Future of Rare Disease Starts Here: NF Leaders Gather in Washington, D.C.

More than 1,000 researchers, patients, and advocates to chart the next frontier in treatment and…
The image shows the "RARECAST: The GLOBAL GENES Podcast" logo with a network of blue connected dots in the background.
CTF in the NewsScience & Research

Listen In: How CTF Is Shaping the Future of NF Drug Development

The Children’s Tumor Foundation’s bold and collaborative approach to advancing research and accelerating treatments for…
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Science & Research

CTF CEO Annette Bakker to Speak on Drug Development Panel at BIO 2025

On June 18, Children’s Tumor Foundation CEO Dr. Annette Bakker will speak at the BIO…
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FeaturedFeatured EUScience & Research

Help Fill the Gap to Fuel NF Research and Care

In the world of NF research and care, dedicated scientists and clinicians have long relied…
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Story of NF

Story of NF: Jenelle B.

When I was one year old, I had a pediatrician appointment. The doctor noticed that…
FeaturedFeatured EUNF EnduranceNF1Ways to Give

NFE Athlete Spotlight: Matthew Haas

Living with neurofibromatosis type 1 (NF1), Matthew Haas has found strength in every step, setting…
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AdvocacyTop StoryTop Story EU

Your Voice Was Heard: $25 Million for NF Research Proposed in New House Bill

The House of Representatives Committee on Appropriations has released its draft report for the Fiscal…
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CTF in the NewsScience & Research

Repurposed Drugs Offer Hope and Momentum for Rare Disease Treatments

While at the 2025 World Orphan Drug Congress (WODC) in Boston, CTF CEO Annette Bakker,…
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NF1Story of NF

Story of NF: Everly F.

At two months old, Everly did not hit her gross motor milestones, and I started…
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NF2-SWNStory of NF

“It’s not a sprint, it’s a marathon” – Brittany’s NF2-SWN Journey

Meet Brittany Iskula: a wife, mom of three, school nurse, runner—and fierce advocate for NF…