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Board of Directors

Our Board of Directors guides the Foundation's mission, sets policies, monitors progress of NF research, and provides oversight and direction.

Officers
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Gabriel Groisman

Chairman | Bal Harbour, FL

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Liz Rodbell

Vice Chair

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RB Harrison

Treasurer

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Simone Manso

Secretary

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Tracy Galloway

Chair Emeritus

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Richard Horvitz

Chair Emeritus

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Annette Bakker, PhD

President

Board Members
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Rob Brainin

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Dan Gilbert

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Sally Gottesman

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Frank Haughton

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Carol Kalagher

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Montse Montaner Picart

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John Morris

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Roger-Ketcha Ngassam

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Mark Oppenheimer

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Emily Parker

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Kenneth C. Rudd

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Kimberly Snipes

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Richard Soll

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Vicki Match Suna

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George Thuronyi

Advisory Board Chairs
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D. Wade Clapp, MD

Chair, Medical Advisory Committee

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Lu Le, MD, PhD

Chair, Research Advisory Board

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Laura Klesse, MD, PhD

Co-Chair, Clinical Care Advisory Board

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Scott Plotkin, MD, PhD

Co-Chair, Clinical Care Advisory Board

Honorary Directors
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Daniel T. Altman

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Linda Halliday Martin

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Steve McKenzie

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Randall Stanicky

Founder and Pro Bono Counsel
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Allan Rubenstein, MD

Director of Medical Affairs Emeritus

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Ed Stern, Esq.

Pro Bono Counsel