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NF1 Microdeletions

Description

This resource is for families who have a deletion of the NF1 gene causing neurofibromatosis type 1 (NF1). This is also referred to as NF1 microdeletion.

This resource is for families who have a deletion of...

NF1 Microdeletions (Spanish)

Description

A Spanish translation of CTF's resource is for families who have a deletion of the NF1 gene causing neurofibromatosis type 1 (NF1). This is also referred to as NF1 microdeletion.

A Spanish translation of CTF's resource is for families who...

NF1 Optic Pathway Gliomas

Description

This resource is for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have an optic pathway glioma (OPG).

This resource is for individuals with neurofibromatosis type 1 (NF1)...

NF1 Optic Pathway Gliomas (Spanish)

Description

A Spanish language resource for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have an optic pathway glioma (OPG).

A Spanish language resource for individuals with neurofibromatosis type 1...

NF1 Plexiform Neurofibromas

Description

This resource is for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have a plexiform neurofibroma.

This resource is for individuals with neurofibromatosis type 1 (NF1)...

NF1 Plexiform Neurofibromas (Spanish)

Description

A resource in Spanish for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have a plexiform neurofibroma.

A resource in Spanish for individuals with neurofibromatosis type 1...

Super Emerson (English)

Description

Super Emerson is a children’s book that introduces neurofibromatosis type 1 (NF1) through the story of a young child with the condition. It can be used on its own or along with the parent resource, Talking to Your Child About NF1, designed to complement it.
 

Super Emerson is a children’s book that introduces neurofibromatosis type...

Super Emerson (French)

Description

Super Emerson (French translation) is a children’s book that introduces neurofibromatosis type 1 (NF1) through the story of a young child with the condition. It can be used on its own or along with the parent resource, Talking to Your Child About NF1, designed to complement it.
 

Super Emerson (French translation) is a children’s book that introduces...

Super Emerson (Spanish)

Description

Super Emerson (Spanish translation) is a children’s book that introduces neurofibromatosis type 1 (NF1) through the story of a young child with the condition. It can be used on its own or along with the parent resource, Talking to Your Child About NF1, designed to complement it.
 

Super Emerson (Spanish translation) is a children’s book that introduces...

Talking to Your Child About NF1 (English)

Description

Talking to Your Child About NF1 is a comprehensive guide that helps caregivers decide what and how to share a diagnosis of neurofibromatosis type 1 (NF1) with their child. It can be used on its own or together with the children's resource, Super Emerson, designed to complement it.

Talking to Your Child About NF1 is a comprehensive guide...