General Information
Clinic Contact Information
Clinic Name
Boston Children's Hospital Multidisciplinary Neurofibromatosis Program
Address
300 Longwood Ave, Boston, MA 02115
Clinic Contact for Scheduling
Clinic Contact for Inquiries
617-355-6394 (NF1)
Additional Clinic Contact for Inquiries
617-355-6388 (NF2-SWN)
Clinic Information
Clinic Professionals
Clinic Director's Name
David T. Miller, MD, PhD
Clinic Co.Director's Name
Nicole Ullrich, MD, PhD
NF1 patients seen?
Yes
NF2-SWN patients seen?
Yes
Other types of SWN patients seen?
Yes
Specialty Areas
Specialty Areas
Age Range
Pediatric and Adult
Comments
Clinic sees patients up to age 25 years. Adults may be seen for initial diagnosis only.
Patients seen in last year under age 18
90%
Patients seen in last year 18 and older
10%
Clinic Specialty Areas
Auditory brainstem implants, Autism/ASD, Behavior/attention difficulties (not autism), Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, Genetics, Learning disabilities or developmental delays, MPNST/sarcomas, Neurology, NF1, NF1 related (non-optic) gliomas/brain tumors, NF2-SWN, NF2-SWN related brain or spine tumors, Oncology- chemo/radiation/other treatments, Optic gliomas/ophthalmology, Pain, Plexiform neurofibromas, Pseudarthrosis, Psychosocial, Schwannomatosis (non-NF2-SWN), Vasculopathies, Vestibular schwannomas
On-site NF/SWN research or clinical trials available?
Yes
Designation
Designations
Clinic Designation
Comprehensive NF1 Center, Comprehensive SWN Center
NF Clinical Trials Consortium (NFCTC) Member
Meets Criteria
