- January 23 – NF1 Cognitive Research
- February 20 – Diagnosed with Schwannomatosis Brochure Update
- February 21 – Gomekli (Mirdametinib), the Latest FDA-Approved Treatment for NF1
- April 10 – Hearing Restoration
- May 8 – Genetic Testing
- May 22 – Breaking Barriers in NF2-Related Schwannomatosis Research
- July 10 – Understanding Artificial Intelligence and Its Impact on NF
- August 14 – Back to School: Advocating for Yourself and/or Your Child
- September 11 – NF Registry: Getting Involved in NF Research
- October 9 – Mosaicism/Segmental NF
- November 13 – TBD
NF Knowledge Series Patient Webinars
CTF is proud to launch a monthly webinar series for families and individuals living with any form of NF. Join us each month to hear the latest in NF research, guidance from experts on issues of clinical care, or cutting-edge issues like the use of AI in healthcare.
View upcoming topics/speakers, and register in the links below.
Upcoming Webinar Dates

Symposia & Webinars
An NF Medical Symposium is a one-day, local or regional conference to educate and support individuals affected by NF. Symposia are often hosted by NF clinics from around the country and audiences may include patients, family members, healthcare providers, educators, etc. Symposia are designed to deliver accurate, up-to-date medical information and provide an opportunity for families to connect with one another.
Children’s Tumor Foundation educational webinars are intended to inform patients and their loved ones about the latest care guidelines and research into all forms of NF.
July 2025
August 2025
Vanderbilt-Ingram Cancer Center Neurofibromatosis and Schwannomatosis Patient and Family Symposium
September 2025
October 2025
November 2025
July 2026
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Events

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