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NF affects 1 in every 2,000 births

What is NF? NF refers to a group of genetic conditions that cause tumors to grow on nerves throughout the body. NF includes neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN), formerly known as neurofibromatosis type 2, or NF2. NF affects 4 million people worldwide. Anyone can be born with NF, and it impacts everyone differently.

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Everything the Children’s Tumor Foundation does is to bring treatments to patients as we work toward a cure.

CTF's Impact
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Need Help Finding an NF Specialist?

Getting the right care starts with the right doctor. Use our Find a Doctor tool to locate NF specialists near you—so you can take the next step with confidence.

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Looking for More Information about NF?

We’re here to help. Visit our Resource Center for trusted information, guides, and tools to support you at every step of your NF journey.

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Newly Diagnosed or Waiting for a Diagnosis?

Getting an NF diagnosis, or waiting for a diagnosis, can be overwhelming. The most important thing to remember is that you are not alone.  We suggest starting your journey with these resources.

Newly DiagnosedUnderstanding NF
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