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NF affects 1 in every 2,000 births

What is NF? NF refers to a group of genetic conditions that cause tumors to grow on nerves throughout the body. NF includes neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN), formerly known as neurofibromatosis type 2, or NF2. NF affects 4 million people worldwide. Anyone can be born with NF, and it impacts everyone differently.

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Everything the Children’s Tumor Foundation does is to bring treatments to patients as we work toward a cure.

CTF's Impact

You are the Key to Unlocking NF Awareness!

This May, during NF Awareness Month, you hold the key to driving progress. Your support fuels research, empowers families, and spreads vital awareness.

When you make a donation of $100 or more, you’ll receive a special CTF keychain—a symbol of the role you play in unlocking a brighter future for everyone living with NF.

Give today. Be the key that opens the door to change.

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Need Help Finding an NF Specialist?

Getting the right care starts with the right doctor. Use our Find a Doctor tool to locate NF specialists near you—so you can take the next step with confidence.

Find a Doctor
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Looking for More Information about NF?

We’re here to help. Visit our Resource Center for trusted information, guides, and tools to support you at every step of your NF journey.

Explore the Resource Center
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Newly Diagnosed or Waiting for a Diagnosis?

Getting an NF diagnosis, or waiting for a diagnosis, can be overwhelming. The most important thing to remember is that you are not alone.  We suggest starting your journey with these resources.

Newly DiagnosedUnderstanding NF
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