
NF Knowledge Series Webinar: Diagnosed with Schwannomatosis Brochure Update
As part of our ongoing monthly NF Knowledge webinar series for families and individuals living with any form of NF, our February topic is the release of our updated Diagnosed with Schwannomatosis brochure.
Dr. Carlos Romo, Assistant Professor of Neurology, Oncology and Medicine, Director of Clinical Research, Neurofibromatosis Therapeutic Acceleration Program at Johns Hopkins University School of Medicine will discuss recent changes in our understanding of schwannomatosis and how that impacts diagnosis and management for patients. We will also be joined by patient representatives living with schwannomatosis who will share their stories and unique perspective.
Registration Link: https://ctf.zoom.us/webinar/register/WN_zm16BAHMTNOQ4tfDgmkOpA