Virtual Case Conference (VCC) for Clinicians: Neurodivergence in NF1

The NF Virtual Case Conference (VCC), a monthly, hour-long program organized by the Clinical Care Advisory Board of the Children’s Tumor Foundation (CTF).

May Topic: Neurodivergence in NF1: Supporting Access to Community Resources and Transition to Adult Healthcare

Register here for one session or the whole series

Speaker:

Madeleine K Franchi, MS, LCGC, Genetic Counselor, NF Clinic at UF College of Medicine, University of Florida Health Jacksonville

Madeleine Franchi, MS, LCGC, is a pediatric genetic counselor at the University of Florida College of Medicine in Jacksonville. Madeleine received a MS degree in Genetic Counseling from the University of Alabama at Birmingham in 2022.

Mentor Title:

Pamela Trapane, MD, MME, Pediatric Genetics, Director of NF Clinic at UF College of Medicine, University of Florida Health Jacksonville

Dr. Pamela Trapane is a Professor and Chief of the Division of Pediatric Genetics and director of the NF Clinic at the University of Florida College of Medicine – Jacksonville. She helped establish and lead the Neurofibromatosis Clinic at the Medical College of Wisconsin and at the University of Iowa. She is the director of the Neurofibromatosis Clinic in Jacksonville, serving children and adults in Northeast Florida and Southeast Georgia. She received her MD from the University of Texas Health Science Center, San Antonio, and completed a Pediatric Residency and Medical Genetics Fellowship at the University of Texas Health Science Center, Houston. In addition, she completed a Master of Medical Education at the University of Iowa. Dr. Trapane has been a member of the CCAB since 2017.

Expert Panel:

Jennifer Janusz, PsyD, ABPP-Cn, Children’s Hospital Colorado

Rita Nathawad, MD, Medical Director Jacksonville Health and Transition Services (JaxHATS), UF Jacksonville

This series offers case-based learning and discussion facilitated by leading NF clinicians.  Each session focuses on different manifestations of neurofibromatosis and/or schwannomatosis (NF/SWN).  Participants are encouraged to ask questions and contribute to the conversations.

Previous discussions are available for viewing here.