About NF Awareness Month

The Children’s Tumor Foundation celebrates NF Awareness Month and World NF Awareness Day (May 17th) for lots of reasons: to put NF in the national (and international) limelight, to foster hope in the NF community, and to create wonderful fundraising opportunities for the innovative NF research supported by Children’s Tumor Foundation.

Watch this video to see all the great things our community did to spread NF awareness in 2017.

For questions or more information about NF Awareness Month activities, contact the Communications team at media@ctf.org.

Shine a Light on NF

Shine a Light on NF is a grassroots initiative that brings NF awareness into the community by lighting up buildings, bridges and monuments in blue and green.


Obtaining a proclamation from your governor, mayor or city council is a wonderful way to raise awareness about NF. Click below for a toolkit and a list of the cities and states that are recognizing NF Awareness Month and World NF Awareness Day.


This is a sampling of our exclusive NF Awareness graphics. Change your social media profile picture and spread the word in May! You can also view more CTF logos and graphics on our Branding page.















Change Your Profile Picture

Change your Facebook profile picture on social media to one that celebrates NF Awareness! Visit the Children's Tumor Foundation on Facebook, scroll down to the frame and click "Try It."

Download Resources

Visit our Resource Library to get materials which you can use to spread the word and educate others. Download Children's Tumor Foundation logos, read our branding guide, and view CTF and NF fact sheets and brochures.

Enter Our Photo Contest

The NF story is one full of hurdles – diagnosis, symptoms, doctor appointments, MRI scans, pain, surgeries, and/or chemo.  But it is also a story of perseverance, strength, and inspiration. “I Know a Fighter" gives voice to those living with neurofibromatosis and is a reflection of the bravery that NF patients exhibit in their daily lives.

Enter the 2018 Children’s Tumor Foundation NF Awareness Month I Know a Fighter photo contest!

Email media@ctf.org with your favorite photo of your Fighter in a blue CTF tee, I Know a Fighter or other End NF gear. Please include a few sentences about when and where the photo was taken and tell us about your fighter! Multiple entries encouraged. Contest ends May 31, 2018. Winner will be announced in June. Submissions may appear on ctf.org, social media and/or in print materials. Winner will receive a goody bag of exclusive CTF and NF merchandise.


Wear your NF Awareness on your sleeve! Or your back! Or your head! You can purchase exclusive Children's Tumor Foundation merchandise by visiting our online store.

Follow Us

Follow us on social media to get the latest news and information, ask questions or send comments, and connect with other members of the NF community.

Contact Us

For questions or to request more information on NF Awareness Month, please contact us at media@ctf.org.