$15 Million for NF Research is Now Official

Sep 28, 2018

President Signs Bill with $15 Million for NF Research

After receiving approval from both chambers of Congress earlier this month, President Trump signed the FY 2019 Defense and Labor, Health, and Human Services Appropriations conference report into law on Friday, September 28.  The conference report includes $15 million in funding to support neurofibromatosis research and is vital to our fight to end NF.  This funding will support strategic research through the Department of Defense’s Neurofibromatosis Research Program (NFRP), resulting in new discoveries and better outcomes for NF patients and their families.  Today would not be a reality without the tireless work and advocacy done by the Children’s Tumor Foundation, the NF Community, patients, and their families.  We should note that having received questions about some earlier announcements made this month in the NF community about this funding, it is only today – after both houses and the President have approved the funding – that this funding is now a reality. This sustained federal funding will allow us to further develop scientific data, break through barriers, and forge a pathway to end NF.