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A Student’s Story of Hope and Courage

By April 26, 2011December 5th, 2023Awareness, Newsletter

This weekend the Detroit Free Press published an inspiring article on Victor Chukwueke, who will deliver the commencement speech at Wayne St. University on May 5.  Victor lives with a particularly challenging case of NF1 that led to tumor masses growing on his skull.  The tumors went untreated in Nigeria — in most cases the tumor masses would be addressed at an earlier stage in the US — but Victor’s mother was determined to find help and eventually they were able to arrange his travel to the States where he underwent multiple surgeries, and has now gone on to receive his college degree, with honors, in biochemistry.

The Foundation was contacted by the Free Press to ensure accuracy in their reporting about the disorder.  We are grateful to their commitment to thorough and accurate information about NF in the reporting of this moving story.