We’re thrilled to reveal the winners of this year’s I Know a Fighter Photo Contest!
I Know a Fighter shines a light on the strength, resilience, and everyday bravery of those living with neurofibromatosis and all forms of schwannomatosis, including NF2-related schwannomatosis. Each photo shared is a powerful reminder that behind every diagnosis is a fighter—and a story worth telling.
Scroll down to see the winning image and a gallery of inspiring honorable mentions. And don’t forget, you can continue to help us raise awareness by using the hashtag #EndNF and sharing your story here.
Winning Photo
My son Zachary has NF1. Our family got together on May 17th and decided to take some fun and uplifting pictures.
-Submitted by Amanda Zellers
Honorable Mentions
I was diagnosed at 11 with NF2-related schwannomatosis. I inherited the disorder from my dad, who passed in 2013 but left behind a legacy. He showed me how to fight NF2 with grace, bravery, humor, resilience, and determination. My son, Roderick, was diagnosed at 5 months old through genetic testing. I started this journey walking alongside my dad, and now I walk alongside my son. NF2 may stack a mountain of barriers, but as long as we stand by one another, there is nothing we cannot overcome. My father showed me how—now it’s my turn to show my son.
-Submitted by Chyenne Duarte
This is my hike up to Delicate Arch in Moab (within Arches National Park) with my brother and cousin in May 2025. I have NF2-related schwannomatosis. My most recent issue was brain surgery followed by a stroke in 2019. I am grateful every day to spread awareness of my rare disease.
-Submitted by Erika Robertson
This is my son Kolsen. He is seven years old and lives in Alabama. He was clinically diagnosed with NF1 on April 15, 2025 and we received the confirmation of his diagnosis on May 5, 2025. This picture captures his personality perfectly. He’s such a happy, kind, and funny child and was definitely born for a purpose. We are so thankful for these t-shirts and information that you provide on your website because it has truly helped us accept this diagnosis and we want to raise awareness and be an advocate for this condition. Because of you we do not feel alone.
-Submitted by Brittany Chapman
At our recent family reunion, everyone wore “I Know a Fighter” shirts to show love and support for my son Clark and me, who both live with neurofibromatosis. We were both born fighters. Living with NF means facing uncertainty, doctor visits, MRIs, and challenges most people don’t see. But it’s also given us strength, empathy, and the resilience you don’t ask for but learn to embrace.
Seeing our family show up like this—to raise awareness and stand beside us—was overwhelming in the best way. It reminded me that no fighter ever stands alone. Clark and I are surrounded by love, and love is louder than fear.
-Submitted by Vivienne Lewis
My 5 year old son, Harvey, who is an absolute gem of a human, lives with NF1. He was diagnosed as an infant due to his cafe au lait spots. We travel out of state annually to visit Dr. Gutmann out of Washington University in St. Louis. He even made it into their brochure! Harvey lives life to the fullest and is loved by everyone he meets! I’ll fight for him forever.
-Submitted by Casey Blount (pictured)