Meet Brittany Iskula: a wife, mom of three, school nurse, runner—and fierce advocate for NF research. Diagnosed with NF2-related schwannomatosis (NF2-SWN) during pregnancy, Brittany’s world changed in an instant. But through brain surgery, therapy, and countless challenges, she’s found strengt
h in her family, joy in running, and purpose in sharing her story. Now, she’s lacing up for the 2025 Chicago Marathon with the NF Endurance Team to raise awareness and show the world that NF may be tough, but so is she.
Can you tell us about your NF journey?
My name is Brittany. I am a wife, mom, school nurse, runner, and now, advocate for NF research! I was diagnosed with NF2-related schwannomatosis (neurofibromatosis type 2) at 30 years old. I was pregnant with our third child when I first started noticing symptoms. It started with odd facial sensations that I didn’t think too much about. Then, I noticed diminished hearing in one ear. I started getting worried when I became unsteady on my feet. After the birth of our baby, my symptoms only worsened. Suddenly and dramatically, our world imploded. Within less than a week, I had an MRI, was diagnosed with NF2, and had emergency brain surgery to remove a large vestibular schwannoma. Little did I know, this was just the beginning of a lifelong detour that I could have never imagined we would be on.
How does NF impact your life now?
Having a chronic condition is exhausting and never-ending. NF impacts my life every day. I have since been dealing with unilateral deafness, facial paralysis, vision and balance issues, and adjusting to this diagnosis mentally. My biggest challenge or fear is the ultimate deafness that I will likely face in my future. I am afraid that I will forget what things sound like. I try to soak up my kids’ little voices and cherish every conversation with my loved ones. The emotional toll has been tough, but I have an amazing family, who support me and help pick me back up whenever I need it. Through the countless medical appointments and MRIs, we do everything we can to make them fun. We love going out to eat, and finding new adventures along the way.
What does running mean to you? How did you “discover” running?
I ran cross country in high school, and as a hobby, for a few years after that. Then for almost 10 years, I took a break from it. Life became busy with three kids. Then came a new diagnosis and even more challenges. After my surgery, I started therapy for my balance and vision problems. My daily therapy has now evolved into running. Getting back into running has been so humbling and life-giving. It has helped me come back to the surface, rebuilding myself with each mile, and given me a way to handle my challenges in life. It feels so good to be back to doing what I love, and giving myself the gift of running again!
What does it mean to you to run the Chicago Marathon with the NF Endurance team?
My sister, Brooke, and I are honored to have the opportunity to run the 2025 Chicago Marathon with The Children’s Tumor Foundation NF Endurance Team! Living with NF has its challenges, but because of this diagnosis, I have become even more passionate about health and running. It reminds me of what I have overcome and what I am still fighting. I will not let NF slow me down or keep me from chasing my dreams. Rather, I will use this motivation to help seek something much, much greater! I am proud to be a part of this team, to spread awareness, and help make NF visible.
What’s a great piece of running advice that you received?
“It’s not a sprint, it’s a marathon.” My sister gave me a bracelet about 10 years ago with this quote on it when I was training for my 1st marathon. This quote has proved to have more meaning than what I initially assumed. Not only does it encourage me to focus on long-term goals and consistent effort, but it has also become so relevant in my health journey. Unfortunately, there is no quick fix or cure for those of us with NF. It will not be a sprint. But, by embracing my challenges and cultivating perseverance, I am building resilience and adaptability to fight for the long haul!
Is there anything else you want to share?
I have now had time to process my NF2-SWN diagnosis. I have accepted that there will be much of my health journey that is out of my control. I am trying to focus on what I can control and how I react to those situations. I look for moments of gratitude about my condition every day. I truly believe I was placed here for a reason. My family and I will continue spreading awareness and fighting for a cure. NF is tough; but we are tougher, and we are resilient. Keep fighting NF warriors! I have a feeling something good is coming our way! Please remember, you are not alone in this fight.
