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Children’s Tumor Foundation Exclusive Charity Partner for Tri Fort Worth

Triathletes will compete and raise money to fund rare disease research


NEW YORK — The Children’s Tumor Foundation (CTF) is pleased to be the exclusive official charity partner for the Tri Fort Worth triathlon, which takes place in Fort Worth, Texas on May 21, 2017. The Children’s Tumor Foundation is the leading nonprofit organization dedicated to funding research for neurofibromatosis (NF), a genetic disorder that causes tumors to grow on nerves throughout the body.  NF affects one in 3,000 people of all populations; currently there is no effective treatment or cure.

At this year’s Tri Fort Worth, athletes will compete in a single-day, full-distance triathlon, which is comprised of a 2.4-mile swim, followed by a 112-mile bike ride, and then a 26.2-mile marathon run. Athletes may also choose to compete in the half distance event.

One of the key benefits of joining the Children’s Tumor Foundation NF Endurance team is the assignment of a local NF Hero – someone living with NF who overcomes the challenges of the disease and thereby inspires the athlete to go further.  Tri Fort Worth athletes and NF heroes support one another throughout the training process with letters of encouragement and photos.

“Having athletes race for my son, Denver, has been life changing,” said Katy Wakin of Burleson, TX, and NF hero mom.  “Getting to know athletes over the years has been inspiring to our family and continues to give us hope, hope that one day there will be a cure.  Denver gets to see for himself the selflessness of others and their passion to find a cure for him.  We have built friendships and relationships to last a lifetime.”

“Tri Fort Worth couldn’t be more excited about the partnership with the Children’s Tumor Foundation,” said Tim Tarpley, Fort Worth Tri Race Director. “In CTF we found a highly rated charity organization that makes a true impact in the lives of others.  Together, we have the unique opportunity to not only support the charity through the event and sponsorship donations, we also have the opportunity for athletes to connect to a “Local Hero” before and during the event. We anticipate the CTF partnership to be an integral part of Tri Fort Worth for many years to come!”

NF Endurance is a national fundraising program of the Children’s Tumor Foundation that gives participants the opportunity to swim, bike or run in endurance events around the world while raising money and awareness for neurofibromatosis.

For additional information about the Children’s Tumor Foundation and to join the NF Endurance team, visit or

About Children’s Tumor Foundation
The Children’s Tumor Foundation is a 501(c)(3) not-for-profit organization dedicated to finding effective treatments for the millions of people worldwide living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2, and schwannomatosis. NF causes tumors to grow on nerves throughout the body and may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. NF affects 1 in every 3,000 births across all populations equally. There is no cure yet – but the Children’s Tumor Foundation mission of driving research, expanding knowledge, and advancing care for the NF community fosters our vision of one day ending NF.  For more information, please visit


Rebecca Harris
Public Relations Manager, Children’s Tumor Foundation