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COVID-19 Video Resources

By September 1, 2021December 4th, 2023Covid-19, Video

As part of our commitment to sharing important information about living with NF, scroll down for a collection of videos related to COVID-19. (To enable closed captioning on any video, click the CC button.)


In this video, CTF Advocate and Volunteer Shannon Walsh and pediatric neuropsychologist Karin Walsh, PsyD of Children’s National Hospital, discuss living with neurofibromatosis (NF) during COVID-19.


As a part of the Children's Tumor Foundation Volunteer Leadership Council (VLC) Networking event series, this Ask Kate Livestream took place on Monday, August 9, 2021 at Kate Kelts lead the conversation around the most frequently asked questions that she answers in her role as CTF's Patient Support Coordinator. She shared questions, discuss her responses, and then opened the conversation up to the patient and advocate panel. Panel included: Renie Moss (AL, NF1 wife/mom), Danielle Bonadies (CT, NF1 mom), Sasha Drebskaya (NY, NF1 patient/mom), Gwen Coverdale (PA, NF1 mom), Conrad Cordova (AZ, NF1 patient/dad), Maxine C. (Canada, NF2 patient).


In this “Ask Kate!” video, Kate discusses COVID-19 and neurofibromatosis and what you should know.


In this Children's Tumor Foundation webinar, Clinical Psychologist Ethan G, Lester, PhD gives practical resiliency skills to help patients and caregivers living with neurofibromatosis (NF) especially during the coronavirus pandemic.


In the midst of COVID-19 outbreak, the NF Community came together for a live global video chat on Friday, March 20, 2020. After an introduction from CTF President Annette Bakker, PhD, NF experts Bruce Korf, MD, PhD, and Scott Plotkin, MD, PhD, answered questions about the coronavirus and its impact on patients with neurofibromatosis, and educational experts from within the community offered tips and resources to parents of children with NF who are home from school.


To view more webinars and videos from the Children's Tumor Foundation, please visit our YouTube channel at