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Indiana University Researcher Looking for Participants for NF1 Study

By September 8, 2016December 18th, 2023NF1, Science & Research

Researchers at the Indiana University are currently recruiting both parents and children with Neurofibromatosis Type 1 (NF1). Dr. Swigonski and her team are conducting a study to develop a health related quality of life instrument for NF1 to better understand and measure how NF1 affects people’s health and well-being.

Eligibility Requirements:

  • Children ages 5-17y with NF1 & their parents
  • Young adults ages 18-25y with NF1 & their parents
  • Living in the United States


What does this study involve?

  • Simply answer surveys online

For more information, contact: or 317-278-0534