Researchers at the Indiana University are currently recruiting both parents and children with Neurofibromatosis Type 1 (NF1). Dr. Swigonski and her team are conducting a study to develop a health related quality of life instrument for NF1 to better understand and measure how NF1 affects people’s health and well-being.
Eligibility Requirements:
- Children ages 5-17y with NF1 & their parents
- Young adults ages 18-25y with NF1 & their parents
- Living in the United States
What does this study involve?
- Simply answer surveys online
For more information, contact:
knutakki@iupui.edu or 317-278-0534
