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Save the Date: National Patient Events 2020

By March 13, 2020December 5th, 2023Awareness, NF Summit, NF1, NF2-SWN, SWN

The Children’s Tumor Foundation hosts national patient and family gatherings annually in cities across the country to allow those living with NF to connect, support, and learn from each other while attending seminars by NF experts on relevant topics pertaining to neurofibromatosis. Watch this video to learn more!

Save the date for one of our 2020 National Patient Events below:

Volunteer Leadership Training Conference (VLTC)
July 30 – August 1, 2020 | Denver, CO
The Children’s Tumor Foundation brings members of the Volunteer Leadership Council together annually for training, networking, and in celebration of their many achievements. Join us as we pilot a stand alone VLTC which will encompass two full days and evenings of training and activities. The agenda for the conference is a combination of workshops and leadership training to enhance the skills of Foundation volunteers by providing necessary tools to participate in CTF national programs and be advocates and ambassadors for the Foundation.


NF Forum: For Patients and Families Living with NF1
August 7 – 9, 2020 | New York, NY
In response to requests from the NF community, CTF, in collaboration with NYU Langone, is hosting its first ever NF1-specific patient and family Forum. This change will allow us to expand our programming including workshops, age-related topics, NF1-specific research and treatment updates, as well as more time for attendees to connect with each other.


NF Forum: The NF2 Gathering
October 15 -18, 2020 | Columbus, OH
The NF2 gathering was a flagship event for the NF2 community for many years and CTF is excited to partner with The Ohio State University to bring this event into the future. This Forum will provide education, updates on NF2 research, with a primary focus on creating time and space for attendees to connect and socialize.


3rd Annual UCLA NF2 and Schwannomatosis Symposium
November 5 – 6, 2020 | Los Angeles, CA
CTF will partner with UCLA to support and expand the patient and family programming happening with the annual NF2 State of the Art meeting.

Please be advised: We continue to closely monitor the coronavirus (COVID-19) situation and are prioritizing the health and safety of the entire NF community – patients, caregivers, researchers, event attendees and staff. We are reviewing CTF events on a case-by-case basis and are communicating any changes or cancelations to attendees as relevant. CLICK HERE to learn more.