NF News Special Edition: NF Conference is now online

Feb 22, 2019, Posted in Newsletter, Awareness, Community, Latest News

We are pleased to present a summary of the 2018 Joint Global Neurofibromatosis Conference, held in Paris at the Maison de la Chimie on November 2 – 6, 2018.

The support and planning of this particular conference was historic in that the Children’s Tumor Foundation (CTF), for the first time, combined forces with the European Neurofibromatosis Group, Association Neurofibromatoses et Recklinghausen, and the NF2/Schwannomatosis State of the Art group, to form the most comprehensive agenda and largest gathering of NF researchers, clinicians, patients, and patient advocates, with over 800 people from around the world in attendance.

Read about the latest advancements in research for NF1, NF2, and schwannomatosis, including important topics such as:

-MEK inhibitors
-Genotype/phenotype
-Animal models
-Cutaneous neurofibromas
-Gliomas
-Epigenetics
-Psychosocial impact of NF
-Neurocognitive / learning disabilities
-Pain
-NF Clinic Network
-Patient Engagement
-and the 2018 Friedrich von Recklinghausen Award Recipient, Ludwine Messiaen, PhD

 

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