Stories of NF: Barry L.

Jul 2, 2018, Posted in NF1, NF Hero

I am 66 years old. I have NF1 and it causes bouts of depression, but I deal with that. I am a fortunate man. I taught school for 35 years having earned my Bachelor’s and Master’s degrees. I am married with no children.

I get stares in public. Those who know me say they don’t even notice the bumps. The worst part is knowing that more tumors will appear. I have had four surgeries to remove the most obnoxious tumors. I also have had a large peripheral nerve sheath tumor removed from my upper right arm. When I was younger I did not have many tumors. Now, in my 60s, I have hundreds.

I attend regional meetings when I can. I connect with others through NF websites. My wife and a few close friends are my mainstays. I am truly blessed to have them. I think I am a lucky man. I have done a few newspaper articles for May NF awareness months.

I am a retired teacher. I do volunteer work with the homeless. I love going out to eat with my small group of friends. I need to lose weight. I want to become involved with our local chapter of the National Alliance for Mental Illness.

QUICK TAKES

 

Motto To the world you may be one person, but to one person, you may be the world.
- Dr. Seuss

Favorite food PASTA!

Superpower To end NF