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Summer Photo Contest 2022 Winner Announced

By September 29, 2022February 6th, 2024Awareness, Story of NF

We’re ecstatic to announce the winners of the 2022 Make NF Visible Summer Photo Contest!

We know how hard the NF community works to raise awareness – and we were thrilled to see where you made NF visible this summer!

Scroll down for the winning photo, a runner-up and honorable mentions! And remember, you can always share your photos with us by using the hashtag #EndNF and/or sharing your Story of NF at!



Our family went to Hershey Park. My husband wore his EndNF t-shirt. A family approached us in the park saying they loved his shirt. The mom said both herself and her son have NF and thanked my husband for spreading awareness.
-Submitted by Kristine Luster



Our grandson Owen is an NF fighter. Our family walked on Vashon Island WA to support him!
-Submitted by Suzanne Ostrom



(in no particular order)





My husband and 2 of our 3 children have NF 1. He runs the Tough Mudder each year and now my children run the Mighty Mudder.
They are examples of being strong and never letting a diagnosis stop you from living life.
-Submitted by Karen Strassburg







It was taken May 17 for NF Awareness Day.
-Submitted by Brittany Arguello








This was taken a top Mt. St Helen’s here in WA state.
-Submitted by Brian Bauer








The annual Roll for a Cure is hosted each year in memory of my daughter,
Mariel, who suffered and died from NF1, by her best friend.
-Submitted by Alesa Story










Owen, age 2, living with NF1. Showing his strength.
-Submitted by Shannon Manfredo