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The latest news, stories, and updates from the Children's Tumor Foundation.

 

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AwarenessFeaturedFeatured EUScience & Research

Reflections of Ludwine Messiaen: A Pioneer Who Advanced NF and other Women in NF

Personal Reflections from Four of Her Female Mentees Discover more articles in the Women in…
FeaturedFeatured EUNF Endurance

The Children’s Tumor Foundation is an Official Partner of the TCS London Marathon

The Children’s Tumor Foundation (CTF) is excited to announce our official charity partnership with the…
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AwarenessFeaturedFeatured EU

Children’s Tumor Foundation 2023 Annual Report

The Children’s Tumor Foundation 2023 Annual Report highlights the year’s progress in NF research, awareness,…
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CTF in the NewsFeaturedFeatured EUScience & Research

PharmaPhorum Interview: How Drug Repositioning is Accelerating Treatments for NF Patients

In a recent interview with PharmaPhorum, a leading media platform dedicated to pharmaceutical and biotech…
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FeaturedFeatured EUNF1PharmaPress Release

FDA Grants Priority Review to SpringWorks Therapeutics’ New Drug for NF1 Patients

The Children’s Tumor Foundation (CTF) is thrilled to announce that our long-time partner, SpringWorks Therapeutics,…
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NF1

Stories of NF: Madeleine L.

I don’t remember much. I was just about two. But I remember growing up and…
A long line of travelers at an airport security checkpoint accompanies text: "Know Before You Go: Traveling with NF," promoting the Children's Tumor Foundation's awareness campaign on neurofibromatosis.
AwarenessFeatured

Traveling with NF: Know Before You Go

Traveling with a condition like NF can bring unique challenges, especially when navigating airport security…
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AwarenessNF1Story of NF

Turner Family Hitting the Road in Fifth Wheel to Make NF Visible!

In this heartwarming and inspiring interview, we have the pleasure of talking with Sarah and…
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NF1Story of NF

Stories of NF: Tracy

I was diagnosed (with NF1) at birth. I have had several surgeries to remove tumors…
Flyer for a Patient Listening Session by Children's Tumor Foundation on Cutaneous Neurofibromas in NF1, scheduled for May 21, 2024.
FeaturedNF1Patient EngagementScience & Research

Summary Report from NF Patients’ Testimony to FDA about living with cutaneous neurofibromas 

This past spring, a group of six patient representatives of the NF1 community met virtually…
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Press ReleaseSpecial EventsWays to Give

‘Dancing with Our Stars’ Gala Returns to the Wally Allen Ballroom to Raise Money for Rare Genetic Disorder 

Local stars partner with local dance instructors for the 17th annual ‘Dancing with Our Stars’…
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NF1Story of NF

Stories of NF: Andrea M

When I was born, the doctors kept telling my mom that I had a clogged…