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NF News Special Edition: NF Conference is now online

Feb 22, 2019, Posted in Newsletter, Awareness, Community, Latest News

We are pleased to present a summary of the 2018 Joint Global Neurofibromatosis Conference, held in Paris at the Maison de la Chimie on November 2 – 6, 2018.

The support and planning of this particular conference was historic in that the Children’s Tumor Foundation (CTF), for the first time, combined forces with the European Neurofibromatosis Group, Association Neurofibromatoses et Recklinghausen, and the NF2/Schwannomatosis State of the Art group, to form the most comprehensive agenda and largest gathering of NF researchers, clinicians, patients, and patient advocates, with over 800 people from around the world in attendance.

Wear Blue & Green on May Seventeen!

Feb 7, 2019, Posted in Awareness, Community, Press Release

Children’s Tumor Foundation Announces New Initiative for World NF Awareness Day

NEW YORK – February 6, 2019 – Over 2.5 million people worldwide are affected by the genetic disorder neurofibromatosis, also known as NF, a condition that surprisingly few have heard of. The Children’s Tumor Foundation is working to change that by leading a movement to “Wear Blue & Green on May Seventeen.”

Duty Free Americas and the Falic Family Foundation Host Golf and Tennis Charity Event That Raises $325,000 for NF Research

Feb 1, 2019, Posted in Fundraiser, Awareness, Community, NF Hero, NF2

The Children’s Tumor Foundation is exceptionally thankful for the generous support of Duty Free Americas and the Falic Family Foundation through their successful golf and tennis charity tournament held in Miami this week. Under sunny skies and with the participation of an enthusiastic and big-hearted crowd, over $325,000 was raised to support our mission to fund critical NF research, with more donations expected to come in following the event. We are particularly grateful for the leadership in this effort shown by Simon Falic, Jerome Falic, and Leon Falic and the entire Falic family.

February 20 Student Benefit Concert Music for a Better World at Manhattan School of Music

Jan 23, 2019, Posted in Fundraiser, Awareness, Community, Press Release

In support of the Children’s Tumor Foundation

New York, New York -- (January 23, 2019) Students of Manhattan School of Music (MSM) present a benefit concert, MUSIC FOR A BETTER WORLD, at Manhattan School of Music (MSM) on February 20, 2019, to raise awareness about the Children’s Tumor Foundation (CTF), a nonprofit whose mission is to end neurofibromatosis (NF) through research.

Two Counties, One Cause: High School students raise $20,000 for NF research

Jan 15, 2019, Posted in Fundraiser, Awareness, Community

For the third year, Tappan Zee High School hosted the annual “Two Counties, One Cause” basketball tournament on Friday, Jan. 11 and Saturday, Jan.12, a fundraiser to support the Children’s Tumor Foundation. The tournament, which featured six teams in the inaugural event, has grown to a field of 10 this year, comprised of five teams from Westchester County and five from Rockland County. Also playing for the first time is the Tappan Zee girls varsity basketball team, taking on Sleepy Hollow on Friday night. This year, the students raised $20,000.