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NF News Winter 2018 is now online

Dec 11, 2018, Posted in Newsletter, Awareness, Community, Latest News

The new issue of NF News, the official newsletter of the Children's Tumor Foundation, is now available! In this issue you will find:

- Global NF Conference | Highlights of 2018 event held in Paris
- Launch of CTF Europe |  Formation of the new European-based medical research NGO
- Fall Fundraising Festivities | Ruby Anniversary Gala, Detroit BeNeFit, Big Shots and Little Stars, Dancing with Our Stars, and New England Gala
- Year-End Donation Match | Your gift will be matched dollar-for-dollar
- And so much more!

Stories of NF: Layla C.

Dec 3, 2018, Posted in Community, NF1, NF Hero

We learned of Layla's NF1 diagnosis when she was only 1 week old.

Layla suffers from severe headaches; there are three growths in her brain stem and one on her spine. She also has restless leg syndrome and ADHD. She has had four eye surgeries since birth.

$1.6 Million Dollars Raised for NF Research at the Ruby Anniversary Gala in NYC

Nov 18, 2018, Posted in Galas, Fundraiser, Community, NF Hero, NF2, Latest News

On a crisp Fall evening at the renowned American Museum of Natural History in New York City, philanthropists, donors and fundraisers gathered with researchers, NF patients and their families to commemorate the Children’s Tumor Foundation 40-year history of fighting NF, and to pay homage to those who first joined together to raise money and awareness when there was none. More than $1.6 million dollars was raised to support exciting NF research endeavors.


Nov 7, 2018, Posted in Schwannomatosis, Awareness, Community, Collaborations, NF1, Press Release, NF2, Latest News

The Children’s Tumor Foundation (CTF) is proud to announce today the formation of the new European-based medical research NGO, called Children’s Tumor Foundation Europe. The United States based organization, with headquarters in New York City, was founded in 1978 and is the largest nongovernmental funder and catalyzer of neurofibromatosis (NF) research in the world, with its mission to drive research, expand knowledge, and advance care for the NF community. CTF Europe launches today as a partner organization to CTF in the United States.

Stories of NF: Brayden M.

Nov 5, 2018, Posted in Community, NF1, NF Hero

Brayden was diagnosed with NF1 at 9 months. He was non-verbal until 2017.