Filter Your Search

$1.6 Million Dollars Raised for NF Research at the Ruby Anniversary Gala in NYC

Nov 18, 2018, Posted in Galas, Fundraiser, Community, NF Hero, NF2, Latest News

On a crisp Fall evening at the renowned American Museum of Natural History in New York City, philanthropists, donors and fundraisers gathered with researchers, NF patients and their families to commemorate the Children’s Tumor Foundation 40-year history of fighting NF, and to pay homage to those who first joined together to raise money and awareness when there was none. More than $1.6 million dollars was raised to support exciting NF research endeavors.

Meet Our 2019 NF Ambassador: McKinnon Galloway

Oct 8, 2018, Posted in Galas, Awareness, NF Hero, NF2

McKinnon Galloway will be honored at the 2018 Ruby Anniversary Gala in NYC on October 22, 2018 as our incoming 2019 Children's Tumor Foundation NF Ambassador. McKinnon Galloway is a young adult who lives in Charlotte, North Carolina. She was diagnosed with NF2 at age 16 after a volleyball hit her in the head during a high school match, causing a concussion. A scan revealed she had tumors unrelated to the concussion. Click to learn more about the remarkable NF story of McKinnon Galloway.

Ruby Anniversary Gala to Celebrate 40 Years of the Children’s Tumor Foundation

Sep 18, 2018, Posted in Galas, NF2

Honorees include philanthropist Carol Harrison Kalagher, NIH Director Francis S. Collins, and NF Ambassador McKinnon Galloway. Festivities to take place at the renowned American Museum of Natural History in NYC on October 22.

Children’s Tumor Foundation Hosts “Shine a Light on NF” Gala to Support Rare Disease Research

Nov 6, 2017, Posted in Galas, Fundraiser, Press Release, Latest News

Honorees include Freda Lewis-Hall of Pfizer, Lara S. Sullivan of SpringWorks Therapeutics, NF Ambassadors Frankie and Olyviah Moriguchi, and a special tribute to the NF Patient

With Master of Ceremonies Raina Seitel, NBC Host & Correspondent

NEW YORK – On Thursday, November 9, 2017, prominent New York business leaders, together with friends, families and fundraisers, will gather at The Lighthouse on Pier 61 for the annual Children’s Tumor Foundation New York Gala, which this year will “Shine a Light on NF.” Funds raised will support research into neurofibromatosis (NF), a genetic disorder that causes tumors to grow on nerves throughout the body and affects 1 in 3,000 births of all populations. There is currently no cure.

Meet the 2018 NF Ambassadors!

Nov 1, 2017, Posted in Galas, NF1, NF Hero, Latest News

Frankie and Olyviah are siblings living in Eugene, Oregon. Both Frankie and Olyviah were diagnosed with NF as babies; their mom, Ayanna, also has NF1. As the 2018 NF Ambassadors, Frankie and Olyviah will attend the NY Gala on November 9, 2017 in New York City. They will also continue their involvement with the Foundation throughout the year at the annual Seattle NF Walk, NF Camp and other events that take place around the country.