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Stories of NF: Michael B.

Dec 10, 2018, Posted in NF1, NF Hero

My family and I have been fighting NF together since I was a baby. I have had multiple surgeries over the years to try that make me feel as comfortable as possible. My mom also has NF. Although I am grateful for the life she and my father gave me, I don’t want kids. With the current state of the world, I don’t want to bring in a child to this world with NF. In my eyes, I think it would be a lot more difficult to be a child in this era then it was in my childhood.

Stories of NF: Layla C.

Dec 3, 2018, Posted in Community, NF1, NF Hero

We learned of Layla's NF1 diagnosis when she was only 1 week old.

Layla suffers from severe headaches; there are three growths in her brain stem and one on her spine. She also has restless leg syndrome and ADHD. She has had four eye surgeries since birth.

$1.6 Million Dollars Raised for NF Research at the Ruby Anniversary Gala in NYC

Nov 18, 2018, Posted in Galas, Fundraiser, Community, NF Hero, NF2, Latest News

On a crisp Fall evening at the renowned American Museum of Natural History in New York City, philanthropists, donors and fundraisers gathered with researchers, NF patients and their families to commemorate the Children’s Tumor Foundation 40-year history of fighting NF, and to pay homage to those who first joined together to raise money and awareness when there was none. More than $1.6 million dollars was raised to support exciting NF research endeavors.

Stories of NF: Brayden M.

Nov 5, 2018, Posted in Community, NF1, NF Hero

Brayden was diagnosed with NF1 at 9 months. He was non-verbal until 2017.

Meet Our 2019 NF Ambassador: McKinnon Galloway

Oct 8, 2018, Posted in Galas, Awareness, NF Hero, NF2

McKinnon Galloway will be honored at the 2018 Ruby Anniversary Gala in NYC on October 22, 2018 as our incoming 2019 Children's Tumor Foundation NF Ambassador. McKinnon Galloway is a young adult who lives in Charlotte, North Carolina. She was diagnosed with NF2 at age 16 after a volleyball hit her in the head during a high school match, causing a concussion. A scan revealed she had tumors unrelated to the concussion. Click to learn more about the remarkable NF story of McKinnon Galloway.