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$1.6 Million Dollars Raised for NF Research at the Ruby Anniversary Gala in NYC

Nov 18, 2018, Posted in Galas, Fundraiser, Community, NF Hero, NF2, Latest News

On a crisp Fall evening at the renowned American Museum of Natural History in New York City, philanthropists, donors and fundraisers gathered with researchers, NF patients and their families to commemorate the Children’s Tumor Foundation 40-year history of fighting NF, and to pay homage to those who first joined together to raise money and awareness when there was none. More than $1.6 million dollars was raised to support exciting NF research endeavors.

ANNOUNCING THE LAUNCH OF CHILDREN’S TUMOR FOUNDATION EUROPE

Nov 7, 2018, Posted in Schwannomatosis, Awareness, Community, Collaborations, NF1, Press Release, NF2, Latest News

The Children’s Tumor Foundation (CTF) is proud to announce today the formation of the new European-based medical research NGO, called Children’s Tumor Foundation Europe. The United States based organization, with headquarters in New York City, was founded in 1978 and is the largest nongovernmental funder and catalyzer of neurofibromatosis (NF) research in the world, with its mission to drive research, expand knowledge, and advance care for the NF community. CTF Europe launches today as a partner organization to CTF in the United States.

Meet Our 2019 NF Ambassador: McKinnon Galloway

Oct 8, 2018, Posted in Galas, Awareness, NF Hero, NF2

McKinnon Galloway will be honored at the 2018 Ruby Anniversary Gala in NYC on October 22, 2018 as our incoming 2019 Children's Tumor Foundation NF Ambassador. McKinnon Galloway is a young adult who lives in Charlotte, North Carolina. She was diagnosed with NF2 at age 16 after a volleyball hit her in the head during a high school match, causing a concussion. A scan revealed she had tumors unrelated to the concussion. Click to learn more about the remarkable NF story of McKinnon Galloway.

Ruby Anniversary Gala to Celebrate 40 Years of the Children’s Tumor Foundation

Sep 18, 2018, Posted in Galas, NF2

Honorees include philanthropist Carol Harrison Kalagher, NIH Director Francis S. Collins, and NF Ambassador McKinnon Galloway. Festivities to take place at the renowned American Museum of Natural History in NYC on October 22.

Reflections on NF Forum from First-Time Participants

Jun 15, 2018, Posted in Schwannomatosis, NF Forum, Community, NF2, Latest News

In May 2018, the NF community gathered in Atlanta, GA for a long weekend of patient engagement training, leadership training, research updates, and patient and family support.  We asked two first-time attendees to reflect on their experience.