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Duty Free Americas and the Falic Family Foundation Host Golf and Tennis Charity Event That Raises $325,000 for NF Research

Feb 1, 2019, Posted in Fundraiser, Awareness, Community, NF Hero, NF2

The Children’s Tumor Foundation is exceptionally thankful for the generous support of Duty Free Americas and the Falic Family Foundation through their successful golf and tennis charity tournament held in Miami this week. Under sunny skies and with the participation of an enthusiastic and big-hearted crowd, over $325,000 was raised to support our mission to fund critical NF research, with more donations expected to come in following the event. We are particularly grateful for the leadership in this effort shown by Simon Falic, Jerome Falic, and Leon Falic and the entire Falic family.

10 Steps Forward in NF Research 2018

Dec 21, 2018, Posted in Schwannomatosis, Awareness, Community, Collaborations, NF1, Synodos, Science, NF2, Latest News

Your ongoing support has allowed us to take huge steps forward in 2018 in the fight against NF. Your efforts and contributions have been instrumental in advancing neurofibromatosis research, providing hope for the millions worldwide who live with NF, and bringing us ever closer to our shared goal of ending NF forever.

Open Science and Data Initiative Announced for Neurofibromatosis

Dec 14, 2018, Posted in Schwannomatosis, Collaborations, NF1, Science, Press Release, NF2, Latest News

Major Research Funders Join Together to Advance Research into Genetic Disorder

New York/Baltimore/Seattle – The Children’s Tumor Foundation (CTF), together with the Neurofibromatosis Therapeutic Acceleration Program (NTAP) and Sage Bionetworks (Sage), has announced the first-ever open data portal for scientific research results in the field of neurofibromatosis (NF). The NF Data Portal marks the major first milestone in all three organizations’ commitment to the development of the larger NF Open Science Initiative (NF-OSI), which draws experts from across research disciplines and disease areas in order to develop treatments for NF, a genetic disorder which affects 2.5 million people worldwide (1 in 3,000 births), and currently has no cure or effective treatment options.

$1.6 Million Dollars Raised for NF Research at the Ruby Anniversary Gala in NYC

Nov 18, 2018, Posted in Galas, Fundraiser, Community, NF Hero, NF2, Latest News

On a crisp Fall evening at the renowned American Museum of Natural History in New York City, philanthropists, donors and fundraisers gathered with researchers, NF patients and their families to commemorate the Children’s Tumor Foundation 40-year history of fighting NF, and to pay homage to those who first joined together to raise money and awareness when there was none. More than $1.6 million dollars was raised to support exciting NF research endeavors.

ANNOUNCING THE LAUNCH OF CHILDREN’S TUMOR FOUNDATION EUROPE

Nov 7, 2018, Posted in Schwannomatosis, Awareness, Community, Collaborations, NF1, Press Release, NF2, Latest News

The Children’s Tumor Foundation (CTF) is proud to announce today the formation of the new European-based medical research NGO, called Children’s Tumor Foundation Europe. The United States based organization, with headquarters in New York City, was founded in 1978 and is the largest nongovernmental funder and catalyzer of neurofibromatosis (NF) research in the world, with its mission to drive research, expand knowledge, and advance care for the NF community. CTF Europe launches today as a partner organization to CTF in the United States.