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Wear Blue & Green on May Seventeen!

Feb 7, 2019, Posted in Awareness, Community, Press Release

Children’s Tumor Foundation Announces New Initiative for World NF Awareness Day

NEW YORK – February 6, 2019 – Over 2.5 million people worldwide are affected by the genetic disorder neurofibromatosis, also known as NF, a condition that surprisingly few have heard of. The Children’s Tumor Foundation is working to change that by leading a movement to “Wear Blue & Green on May Seventeen.”

February 20 Student Benefit Concert Music for a Better World at Manhattan School of Music

Jan 23, 2019, Posted in Fundraiser, Awareness, Community, Press Release

In support of the Children’s Tumor Foundation

New York, New York -- (January 23, 2019) Students of Manhattan School of Music (MSM) present a benefit concert, MUSIC FOR A BETTER WORLD, at Manhattan School of Music (MSM) on February 20, 2019, to raise awareness about the Children’s Tumor Foundation (CTF), a nonprofit whose mission is to end neurofibromatosis (NF) through research.

Tappan Zee High School to Host Basketball Tournament to Benefit Children's Tumor Foundation

Jan 9, 2019, Posted in Fundraiser, Awareness, Community, Press Release

Orangeburg, NY—Tappan Zee High School is set to host the third annual “Two Counties, One Cause”  basketball tournament, a fundraiser to support the Children’s Tumor Foundation on Friday, Jan. 11 and Saturday, Jan.12, 2019.

Open Science and Data Initiative Announced for Neurofibromatosis

Dec 14, 2018, Posted in Schwannomatosis, Collaborations, NF1, Science, Press Release, NF2, Latest News

Major Research Funders Join Together to Advance Research into Genetic Disorder

New York/Baltimore/Seattle – The Children’s Tumor Foundation (CTF), together with the Neurofibromatosis Therapeutic Acceleration Program (NTAP) and Sage Bionetworks (Sage), has announced the first-ever open data portal for scientific research results in the field of neurofibromatosis (NF). The NF Data Portal marks the major first milestone in all three organizations’ commitment to the development of the larger NF Open Science Initiative (NF-OSI), which draws experts from across research disciplines and disease areas in order to develop treatments for NF, a genetic disorder which affects 2.5 million people worldwide (1 in 3,000 births), and currently has no cure or effective treatment options.

ANNOUNCING THE LAUNCH OF CHILDREN’S TUMOR FOUNDATION EUROPE

Nov 7, 2018, Posted in Schwannomatosis, Awareness, Community, Collaborations, NF1, Press Release, NF2, Latest News

The Children’s Tumor Foundation (CTF) is proud to announce today the formation of the new European-based medical research NGO, called Children’s Tumor Foundation Europe. The United States based organization, with headquarters in New York City, was founded in 1978 and is the largest nongovernmental funder and catalyzer of neurofibromatosis (NF) research in the world, with its mission to drive research, expand knowledge, and advance care for the NF community. CTF Europe launches today as a partner organization to CTF in the United States.