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Children’s Tumor Foundation Announces New Initiative for World NF Awareness Day
NEW YORK – February 6, 2019 – Over 2.5 million people worldwide are affected by the genetic disorder neurofibromatosis, also known as NF, a condition that surprisingly few have heard of. The Children’s Tumor Foundation is working to change that by leading a movement to “Wear Blue & Green on May Seventeen.”
In support of the Children’s Tumor Foundation
New York, New York -- (January 23, 2019) Students of Manhattan School of Music (MSM) present a benefit concert, MUSIC FOR A BETTER WORLD, at Manhattan School of Music (MSM) on February 20, 2019, to raise awareness about the Children’s Tumor Foundation (CTF), a nonprofit whose mission is to end neurofibromatosis (NF) through research.
Orangeburg, NY—Tappan Zee High School is set to host the third annual “Two Counties, One Cause” basketball tournament, a fundraiser to support the Children’s Tumor Foundation on Friday, Jan. 11 and Saturday, Jan.12, 2019.
Major Research Funders Join Together to Advance Research into Genetic Disorder
New York/Baltimore/Seattle – The Children’s Tumor Foundation (CTF), together with the Neurofibromatosis Therapeutic Acceleration Program (NTAP) and Sage Bionetworks (Sage), has announced the first-ever open data portal for scientific research results in the field of neurofibromatosis (NF). The NF Data Portal marks the major first milestone in all three organizations’ commitment to the development of the larger NF Open Science Initiative (NF-OSI), which draws experts from across research disciplines and disease areas in order to develop treatments for NF, a genetic disorder which affects 2.5 million people worldwide (1 in 3,000 births), and currently has no cure or effective treatment options.
The Children’s Tumor Foundation (CTF) is proud to announce today the formation of the new European-based medical research NGO, called Children’s Tumor Foundation Europe. The United States based organization, with headquarters in New York City, was founded in 1978 and is the largest nongovernmental funder and catalyzer of neurofibromatosis (NF) research in the world, with its mission to drive research, expand knowledge, and advance care for the NF community. CTF Europe launches today as a partner organization to CTF in the United States.