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Four Funders With One Goal – to End NF

Feb 19, 2019, Posted in CTF in the News, Published, Collaborations, NF1, Science, Latest News

One of the more exciting developments in neurofibromatosis (NF) research today is the success of the MEK inhibitor clinical trial, in which over 70% of participants are seeing reductions of 20-55% in the size of their inoperable plexiform neurofibromas. The research surrounding this particular drug, selumetinib, is being prepared for submission to the FDA, and indicators are that it could become the first-ever approved drug for NF.

Call for Applications for the class of 2019 Francis S. Collins Scholars

Jan 31, 2019, Posted in Outside Opportunities, NF1, Science

The Neurofibromatosis Therapeutic Acceleration Program (NTAP) is now accepting applications for the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research. The Collins Scholars program brings together a community of exceptionally well-trained clinician scientists who will be leaders in the field of NF1 research.

New York Stem Cell Foundation Early Career Investigator Award RFAs now open

Jan 9, 2019, Posted in Outside Opportunities, Science

The 2019 New York Stem Cell Foundation Early Career Investigator Award RFAs have been released, which are open to early career investigators around the world. These awards provide $1.5 million over 5 years.

Synodos Does It Again: Breaking Barriers to Solve the ‘Impossible’ Problems

Dec 26, 2018, Posted in Science

Children’s Tumor Foundation Research Advances Understanding of Brain Tumors

Treatment for low-grade gliomas in patients living with neurofibromatosis type 1 are now one step closer thanks to recent research discoveries initiated and funded by the Children’s Tumor Foundation.

10 Steps Forward in NF Research 2018

Dec 21, 2018, Posted in Schwannomatosis, Awareness, Community, Collaborations, NF1, Synodos, Science, NF2, Latest News

Your ongoing support has allowed us to take huge steps forward in 2018 in the fight against NF. Your efforts and contributions have been instrumental in advancing neurofibromatosis research, providing hope for the millions worldwide who live with NF, and bringing us ever closer to our shared goal of ending NF forever.