Skip to main content

News

The latest news, stories, and updates from the Children's Tumor Foundation.

 

Filter

A person with short, light brown hair smiles at the camera, seated indoors in front of a window with trees visible outside.
Video

A Decade of Dedication: Stephanie Bouley’s Journey to Advance NF1 Research

Stephanie Bouley has spent the past 11 years searching for new treatment options for neurofibromatosis…
Young boy lies on pavement next to chalk drawings of balloons and clouds, with text reading "NF CAN'T HOLD ME DOWN." He wears sunglasses and a shirt that says "Born a fighter.
AwarenessFeaturedFeatured EU

Announcing the Winners of the 2025 “I Know a Fighter” Photo Contest!

We’re thrilled to reveal the winners of this year’s I Know a Fighter Photo Contest!…
Young boy in a blue shirt and black shorts holds a green frisbee while sitting on a wooden ledge in front of a large round window with plants outside.
NF1Story of NF

Story of NF: Ivan R.

This story was submitted by Ivan's mother, Francis. Ivan was only about 3-4 months old…
A middle-aged man with short dark hair, wearing glasses and a dark coat, stands in front of a neutral background, looking at the camera.
Awards & GrantsFeaturedFeatured EU

The Friedrich von Recklinghausen Award: Neurofibromatosis Tradition and Progress

The Children’s Tumor Foundation’s Friedrich von Recklinghausen Award is given to individuals in the professional…
A circular logo with overlapping green and blue chemistry flask and beaker icons above the letters "CTF".
FeaturedFeatured EUPress Release

The Future of Rare Disease Starts Here: NF Leaders Gather in Washington, D.C.

More than 1,000 researchers, patients, and advocates to chart the next frontier in treatment and…
The image shows the "RARECAST: The GLOBAL GENES Podcast" logo with a network of blue connected dots in the background.
CTF in the NewsScience & Research

Listen In: How CTF Is Shaping the Future of NF Drug Development

The Children’s Tumor Foundation’s bold and collaborative approach to advancing research and accelerating treatments for…
Logo for the BIO International Convention, featuring the word "Bio" with a gradient blue-green leaf design and "International Convention" in bold gray text.
Science & Research

CTF CEO Annette Bakker to Speak on Drug Development Panel at BIO 2025

On June 18, Children’s Tumor Foundation CEO Dr. Annette Bakker will speak at the BIO…
A gloved hand uses a pipette to add liquid to a multiwell plate in a laboratory setting.
FeaturedFeatured EUScience & Research

Help Fill the Gap to Fuel NF Research and Care

In the world of NF research and care, dedicated scientists and clinicians have long relied…
A person with dark hair and a black shirt smiles while sitting in a restaurant booth, with kitchen equipment and condiments visible in the background.
Story of NF

Story of NF: Jenelle B.

When I was one year old, I had a pediatrician appointment. The doctor noticed that…
FeaturedFeatured EUNF EnduranceNF1Ways to Give

NFE Athlete Spotlight: Matthew Haas

Living with neurofibromatosis type 1 (NF1), Matthew Haas has found strength in every step, setting…
The United States Capitol building with its white dome and columns, set against a blue sky with clouds and some trees in the foreground.
AdvocacyTop StoryTop Story EU

Your Voice Was Heard: $25 Million for NF Research Proposed in New House Bill

The House of Representatives Committee on Appropriations has released its draft report for the Fiscal…
An orange prescription bottle tipped over, spilling several white round tablets onto an orange surface.
CTF in the NewsScience & Research

Repurposed Drugs Offer Hope and Momentum for Rare Disease Treatments

While at the 2025 World Orphan Drug Congress (WODC) in Boston, CTF CEO Annette Bakker,…