Welcome families, friends, and supporters of those living with NF2-related schwannomatosis (NF2-SWN). Together, we’re raising awareness and driving donations to fuel research and provide vital support for the NF2-SWN community.
Take Action for NF2-SWN
Driving Awareness & Fueling Research for NF2-SWN
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CTF NF Ambassador: Leanna Scaglione
Diagnosed with NF2-related schwannomatosis at 16 after a spinal tumor ended her ballet aspirations, Leanna has faced numerous challenges, including multiple surgeries, hearing loss, and facial paralysis. Despite these hurdles, she has become a passionate advocate and endurance athlete, using her experiences to raise awareness and inspire others. Through her involvement with the NF Endurance team, Leanna demonstrates unwavering resilience, proving that determination can overcome adversity.
Our Commitment to NF2-SWN: Backed by Action
At the Children’s Tumor Foundation, we recognize the urgency and unmet needs of those living with NF2-related schwannomatosis. That’s why we’ve committed over $2.5 million across 14 active research grants focused exclusively on NF2-SWN. These projects span clinical trials, drug discovery, quality of life, and foundational science — each one selected for its potential to lead to better treatments, faster.
CTF’s NF2-SWN Research Portfolio
$2.5 Million in Funding Across 14 Active Grants
What is NF2-SWN?
NF refers to a group of genetic conditions that cause tumors to grow on nerves throughout the body. One of the rarest forms is NF2-related schwannomatosis (NF2-SWN), which affects about 1 in 25,000 people worldwide. It is marked by the growth of benign tumors on the hearing and balance nerves, often leading to hearing loss, as well as other complications like vision issues and spinal tumors.
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